Myositis Community
Myositis
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WELCOME TO THE MYOSITIS COMMUNITY: This Patient-To-Patient Community is for discussions relating to Myositis which is an inflammation of skeletal muscles, which are also called the voluntary muscles. These are the muscles you consciously control that help you move your body. An injury, infection or autoimmune disease can cause myositis.

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Myositis

My sister has these symptoms, she has fatigue when she walks and can't walk far. Her heart will race, when she sits down she is fine. She has no energy. She gets black spots and can't hold her arms over her head. Many doctors have looked at her and can't find what is wrong. I am her brother and just trying to find anyone who might have these symptoms. This has been frustrating for her and family for the past few years. Just looking for some answers. Thank for your time.
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1666434_tn?1325265950
Did you ever find out what this was?  Was she ever diagnosed?  Send us an update when you can.
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Sounds like POLYmyositis. Many Drs unfamiliar with symptoms and there are few agreed definitive tests or treatment protocols. Took ME almost 10 years to figure out the various & sundry misdiagnosis were actually due to one complicated syndrome. But the arms over the head fatigue is a key sign! Good luck
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