Necrotizing enterocolitis (NEC) with resulting short bowel syndrome is a difficult disease to treat. From what you describe, it looks like your daughter's medical team is doing all the right things. Difficulty with movement and absorption of feeds can come and go, and there is no "standard" approach to treatment that will work always work. The treatment and feeding regimen for each patient must be individualized as it is being done for your daughter.
Thank you. Do you know of any other type of formulas that might help her? I mean help her with her short bowel or special formulas for that? Have you also heard of omegaven the other type of lipids being used in Boston? the omega 3's? if so what do you think of that?