I am 22 weeks pregnant now and my baby has been diagnosed with Hypolastic Left Heart Syndrome, and we are going to see a Pediatric Cardiologist tomorrow for more details. Is there any extra information you can give me? I am trying to learn everything I can.
Hypoplastic left heart syndrome occurs when the "left" side of the heart, which receives blood from the lungs and pumps it out to the body, does not fully develop. There is a spectrum of severity for this disease, but most babies will require cardiac surgery at a specialized center within a few days of birth. Most infants these days will have 3 separate surgeries in the first few years of life, spaced apart to to be appropriate to the infant's cardiac and lung development.
The pediatric cardiologist will be very important as they will work with the neonatologists, you, and the pediatric cardiac surgeon to manage your baby's disease. The pediatric cardiologist will explain the surgeries, timing, and risks to you when you meet.
At the time of delivery, a neonatologist like myself will likely attend the delivery to take care of your baby. Most babies with hypoplastic left heart will be develop and grow until close to the expected due date. They can usually breath on their own, and will have some blood flow to the body through a vessel called the Ductus Arteriosus. Normally, the Ductus Arteriosus closes itself off within 24 - 48 hours after birth. The neonatologist will start a medication that will keep the Ductus Arteriosus open until your baby can be fully evaluated by the cardiologist and surgery can be planned.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.