please help now

i have a boy that was born at 28 weeks and his estmated gestatinal age is now 30 weeks and 4 days he had cotracted ecoli at 5 days old and then showed signs of mengitus but we still have not gotten a clean spinal to prove that now he has a IVH that a ventrcal tap that pulled only blood show negtive in the cultures done on it.... This poor child has been put through intabation and 3 spinals an over dose of 5 times the amount of  amakacin also somthing happend to the ventaltor that cause him to get fluid in the right lung on saterday night and he clamped down and his heart rate dropped and after two shots of epinephrine he opened up and the were able to reintabate him also had stressceasures  witch have been halted by Phenobarbital. Now we have seen a total of 5 neonatoligest and all have a diffrent opinon and one decied this and the other decieds that we have watch as the played with his blood pressure and heart rate and one thing this the other that we watched as one weened of dompimine and the other start it back on take hime off the phenobarbital and the other start one keep him so sadated you couldnt even tell he was alive and the other do the total oppsite i am now takling to doctor number 6 who of course want anthore spinal and now an MRI we oked the MRI but dont see the need for a spinal becuse of a high crp that has been up and down since this has all started we really need help and advice and dont know what to do next

[Yao Sun, MD, PhD]

I am sorry that your son is so sick.  In situations like this, I really cannot offer any information because the management is totally dependent upon the individuals patient's situation.

You should continue to talk with the neonatologists and ask for family meetings if you feel you are not getting enough information.  Sometimes talking with the social worker for the Neonatal Intensive Care Unit can also help.  You can also ask to meet with any specialists that the Neonatologist may have consulted.