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? diagnosis, can anybody suggest a specialist

by elise18, Oct 12, 2008 12:18AM
About 2 years ago I started suffering from peripheral neuropathy in my hands and then my feet.  I also get aching muscles and mild tremors at times.  Obviously I was referred to a neurologist.  Tests have shown that I have an elevated IgM (6.66 g/L), a mildly low IgA (0.90 g/L), a four times normal GM-1 IgM Antibodies (4297 BTU).  Bone Marrow Biopsy shows that I have Lymphocyte clusters but no other evidence of Lymphoma, TB etc.  

On examination I have normal strength, normal nerve conduction studies and normal reflexes.  I DO NOT have a benz jones protein or and abnormal monoclonal bands. My Brain MRI is normal with no evidence of demyelination  I live in Brisbane, Australia and my neurologist and hematologist are completely confused by my symptoms.  My neuropathy is controlled by amitryptyline and Tegratol.  I suppose that my closest diagnosis is a Chronic immune sensory polyradiculopathy but that apparently doesn't explain my blood results and my bone marrow biopsy.  Has anybody got any suggestions or know any good specialists anywhere that may be helpful.  I am prepared to travel if necessary because I am sick of everyone telling me that they don't know what is going on.

Thanks
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