I just did a quick search for lyme/narcolepsy and found a site that listed narcolepsy as a symptom. I was curious since I was just diagnosed with narcolepsy, too. As you see above I have many strange ailments, I saw some listed and I had a rash that fits the description, but I've been tested 3x's.
http://lyme-disease-symptom.com/ is the site.
can lyme trigger narcolepsy?
do most people, who think they have lyme and get tested, get a negative result and then go on to be diagnosed with depression and anxiety? and then do doctors begin to diagnose you with other problems, some even serious? i swear i have lyme, probably chronic, but my test was negative, of course! knowing you probably have lyme, being told you're crazy, then being told you have other, actual, medical problems WILL make you crazy! today i was told i have narcolepsy... w t f? i just had TMJ surgery (second one in 3 years, might i add!). i'm only 21. i wanna do well in school. i want a life. but no, i'm crazy. and lazy (narcolepsy). why do doctors waste so much time and money rather than just give a clinical diagnosis for lyme and treat. UGH!
I was tested 3 times with the Elisa and Western Blot and was negative. I was diag with MS (I have 3 lesions in the corpus callosum), but then was told by an MS specialist that I didn't have it. I think my neuro still believes I have it, but I haven't had a new lesion in 8 yrs. Symptoms keep popping up and my neuro exam is never completely normal, there is always something.
I copied/pasted the dr's response and emailed my husband. Yeah, we email each other. LOL I wish he would take it more seriously! I think part of the problem of him not wanting to go to the dr's, other than being a man ;o), is because he sees what I have been through. I have soooo many specialists, it's a wonder I'm not completely bonkers.
Thanks for sharing.
I live in NJ and my husband was recently bit by a tick. The bite got infected so he went to the dr. The dr. said it wasn't Lyme, how did he know? He gave him antibiotics for a week. I am really worried that we are going to pay the price later.
I had a rash, years ago, that sort of sounds like the rash described. It lasted a long time, it started as a small rash that grew bigger as the center cleared. Not exactly a bullseye, but could it have been that? We did find a tick in the bed. That year was a really bad year for ticks!
I have so many health problems, I guess many started before that, but here's my unbelieveable list of ailments:
MVP, MR, TR, Inappropriate Sinus Tachycardia, Neurocardiogenic Syncope, IBS, (dysautonomia) Raynaud
Please keep in mind that I am unable to diagnose you since I am unable to examine you and this forum should be used for educational purposes only. You describe a very common problem with diagnosing and treating lyme disease. If a patient presents after a tick bite in a lyme endemic area, treatment should begin immediately with antibiotics (amoxicillin or Augmentin for 28 days) and lab tests should be ordered to confirm the diagnosis only. However, in 30-50% of cases the tests can be negative despite true disease. This is becuase Borrelia burgdorferi (the spirocete that causes Lyme disease) is immunosuppressive and inhibits antibody production and thus the tests often appear negative until treatment has been started and reduces the affect of the Borrelia burgdorferi. Thus Lyme disease remains a clinical diagnosis and requires a clinician sensitive to the devastation this deisease can cause. There are many neurologic effects of Lyme disease, if it causes an encephalitis/meningitis (brain infection, brain covering infection). It is important to keep in mind that Borrelia burgdorferi can reach the nervous system within 12 hours of a tick bite, and treatment should be started early. Some diagnostic tests used for Lyme disease patients include MRI brain (to evaluate for encephalitis) Lumbar puncture (to evaluate for meningitis) EMG (to evaluate for peripheral nervous system involvement) SPECT scan (to evaluate for vasocontrictive disease that can lead to increased presure, headaches, and cognitive/psychiatric problems). Chronic lyme disease is contributed not only by untreated or under treated disease, but also by coinfections that can occur with tick bites including Erlichia, Q-fever, babesiosis, Rocky-mountain spotted fever. I hope this has been helpful.