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16 doctors and 16 yrs later...can you help?
When I was 18 I began having very minor weakness in my legs at work as a hostess.  Very in frequent.  Was tested for diabetes, hypoglycemia. Negative.  When I turn 24 I began a career as a CNA in a busy Nursing Home and the weakness increased.  I shook internally and my knees would give out, but still it was not at a level to worry about.  7 years ago I gave birth to my son and got postpartum hyperthyroidism which lasted 8 months and went a way.  I would have tachycardia up to 199 bpm on a pulse ox.  The muscle weakness increased and also included my arms and shoulders and soon accompanied by studdering, inability to talk, chew, swallow, my legs would give out intirely....normally always accompanied by tachy of some sort normally up to 150 pbm...sometimes it would be normal.   I can always hear my surroundings, but not always able to respond, which lasts seconds to minutes or until I drink milk, or relax.   Theses symptoms seem worse when I am stressed out or extremely busy at work and drinking milk seems to reduce the symptoms for a short while (potassium?)  Now my newest symptoms include sevre muscle jerking.  Seen 16 doctors.  Had the following: EKG, EMG, Muscle biopsy, EEG, TEE, ALL Blood work, CAT SCAN of the brain, MRI of the brain, MRA of the torso and in to my head.  All artieries checked.  They thought I had Periodic Paralysis disorder, biopsy neg.  Have thought I had Narcolepsy with Cat. which I still believe is an option because of sleep issues since I was 12 including the nightmares and sleep paralysis, but my sleep study say I am extrmely tired but REM is normal.  I am bipolar and take Lithium 450 two times a day since I was 22 and with in normal limits.  I now take Paxil 40 mg which reduces these episodes to almost 0 if I take it regularly and on time.  Can you give me any insight to at least if this sounds neuro related or cardio related or any insight at all would be great.  I have been all of the state of PA to specialists and I am tired.  Thank you.
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Can anyone give me a suggestion?  Dr's patients, anyone with anything similiar?  Running out of PA doctors.
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Lyme disease?  Read the post by "thester" above.
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