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2 Month Old Stops Breathing During Sleep
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2 Month Old Stops Breathing During Sleep

I have a 2month old baby boy names Kalvyn. We live in Illinois and when he sleeps he stops breathing we have been to the hospital in our home town and they don't know what is wrong, we have been sent to St. Francis medical center in Peoria, Illinois and they don't know what is wrong and I am very concerned that something is going to happen to him if we don't do something now!!!!!

He has been tested for sepsis and meningitis and some other things and that has all come back negative and I am starting to lose hope with these doctors!!!  do you have any suggestions on what it could be like or what adviceyou can give me???? please contact me as soon as possible and let me know what you think or what we can do!

Very concerned mother!
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Avatar_n_tn
Prolonged breath holding can be a sign of acid reflux from the stomach, a sleep disorder, and seizures. If you can travel to Chicago I would recommend going to one of the larger academic centers for a second opinion. They may be able to perform a sleep study, video/EEG (brian wave) monitoring, and he may need to have a brain scan. Good luck.
8 Comments
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Avatar_n_tn
has he ever been checked for apnea, or reflux? has he had a neurological eval?  these are a few things that come to mind....
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Avatar_n_tn
Hi,

For how many seconds and how many times either at naptime or night does your baby stop breathing? Is is more prominant after his feedings? I am a respiratory therapist not a doctor, but there are tests that can tell if your baby has apnea.  I strongly suggest that you follow up on this.  It is better to be safe.  If there is a problem with apnea there are devices that can monitor your baby during sleep and help with apnea.  A pediatric pulmonologist may be helpful if you haven't seen one already.  I am not sure by your post what type of specialist you have seen.  I understand your concern, but a baby's respiratory rate is normally more shallow and rapid than an adult.  Sometimes it will appear that a baby is not breathing because their breathing is more shallow.  

Also you can check your baby's coloring during sleep.  If his fingernails and lips are pink then that usually means that there is adequate oxygenation. When you were at the hopital did they mention if he had a low oxygen saturation or level?

You may want to research apnea and check the signs.  Good luck.
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Avatar_n_tn
Hi Cindy, I know your frustration. My son also used to stop breathing in his sleep. When he was about 2 or 3 months old I just happened to check on him in the middle of the night and he was blue. When I grbbed him out of the crib he started breathing. He was taken to the hospital where they did a sleep study on him and found that he had sleep apnea. They sent him home with an apnea moniter. We would hook him up to it at nap time and also bedtime. When he would stop breathing it would alarm. We would just gently pat him and call his name, that would be enough to start him breathing again. By the time he was about 18 months he out grew the sleep apnea. He is now a healthy 13 year old. I dont know if this is what your baby has. I hope that this helps you a little or gives you maybe some direction. I know it is very scary!
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Avatar_n_tn
Cindy, your post sent shivers down my spine. When my youngest was six weeks old, I happened to be holding him when suddenly he stopped breathing and turned blue. He was brought to the local hospital and monitored overnight, then did the same thing the following morning as a nurse was holding him. He was then sent to Children's Hospital for about two weeks and went through various tests - the worst being the spinal tap. To make a long story short, it was never determined why he would stop breathing and he was sent home with a monitor which he had to be hooked to whenever I wasn't holding him. He was also put on Phenobarb (I hope my memory is correct on this), although the neurologist told me that he didn't have classic symptoms of seizures. When he was about four months, he was taken off the monitor and weaned off the Phenobarb and never had any problems since. He is now a healthy six year old. I hope that this will help you to know that you are not alone. I found that having him on the monitor gave me peace of mind.
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Avatar_n_tn
Cindy--

It's been a month since your post, so I hope you have some answers and relief by now.  My now-2-year-old son had the same symptoms from birth.  He looked so good awake that it took me a while to get doctors to believe me.  It turned out that my son had severe gastroesophageal reflux (he still has it, but milder now) and was allergic to his formula as well. Good luck--

Lauren
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Avatar_n_tn
I also hope that you have found something out.  I just happened to be looking for my own o2 sat moniter since my 20 month old son has just gotten home from adnoid (adenoid) & tonsil removal.  My first advice to you before I tell you my story is KEEP PERSISTANT and TELL the doctor's what you want.  DO NOT wait for them to give you an answer!  But do make them think it is their idea.... So begins my tale...

At 2 months old our son began to arch his back into extension and turn blue.  Independant from that, he had a horrible dry heave, retching cough that sometimes was accompanied by projectile vomiting.  I brought him to Connecticut Children's Medical Center's ER one night that he turned blue.  There they proceeded to tell me that he had an upper respiratory infection.  Obviously unhappy with that, since this is my 2nd child and I know what an URI is) the next day I went to my pediatrician and she informed me of the same thing.  On and one this went, ER to MD, for 8 months.  They admitted him into the hospital when one of the other doctor's heard his cough and thought that it might be whopping cough.  Well a week later we were discharged with acid reflux (GERD).

For 2 more months this went on, with gastoentrology and medicine added into this, and during this time we decided to video tape these spells so the pedi's could see that he was doing this not only eating but sleeping, playing, etc. After another trip to the ER and almost getting into a fist fight with the attending after I showed her the video tape and she proceeded to tell me it WAS just acid reflux and I was over-feeding my child, not thicking his feeds, etc, etc. I started calling ALL the doctor's. Finally my GI doctor had me come in for an upper endoscopy.  When she came out she stated that she had good and bad news.  The good news was that she cleared him of GI at that point, but there was no way she was letting him go home.  He did one of his spells under sedation and she was terrified.  So another week passes in the hospital and I think after EEG's, and all sorts of other tests were done, a bronchoscopy was done and this time it was lyringomalsia, a softening of the larynx that was suppose to heal around 18 months.

I like to say at 18 months this ended but it didn't.  As soon as 18 months hit I called my pedi and on top of all the other doctor's I was seeing, I now got ENT added.  He ordered tests but thought it was GI so back to GI I went and they said it was ENT.  In the meantime a sleep study was done and it was not good to say the least and he actually had a good night's sleep compared to others.  He hap sleep apnea with his lowest O2 reading going to a 67.  My ENT said it was the worst pedi sleep study that he has seen in about 4 years.  So now at 20 months he just had his adnoids which were almost completely blocking his nasal airway and large tonsils removed.  His O2 levels when he's awake, in the hospital anwyay, are very good but they still go down when he sleeps.  He now goes down to 88 O2 sat which still ian't good but better than before.

By the way I went to an allergist on my own accord and the minute I walked in the door and saw him "cough" he said he needed his tonsils and adnoids out knowing nothing about him and not even being in that specialty so there are GREAT doctors around.

I hope somewhere in my actually shortened version you find your answer.  You just have to be persistant and do not take what each doctor says as the truth because usually there's a little truth in what they all say.  I love my pediatrician, GI, ENT and allergist.  It's just unfortunate that sometimes things take longer when something isn't presenting as textbook and they don't have time to consult with each other.  You're the mom.  You're the one with them 24/7.  Hopefully this surgery will end my saga. You will be in my thoughts so please post an update when you get one....
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Avatar_n_tn
I also hope that you have found something out.  I just happened to be looking for my own o2 sat moniter since my 20 month old son has just gotten home from adnoid (adenoid) & tonsil removal.  My first advice to you before I tell you my story is KEEP PERSISTANT and TELL the doctor's what you want.  DO NOT wait for them to give you an answer!  But do make them think it is their idea.... So begins my tale...

At 2 months old our son began to arch his back into extension and turn blue.  Independant from that, he had a horrible dry heave, retching cough that sometimes was accompanied by projectile vomiting.  I brought him to Connecticut Children's Medical Center's ER one night that he turned blue.  There they proceeded to tell me that he had an upper respiratory infection.  Obviously unhappy with that, since this is my 2nd child and I know what an URI is) the next day I went to my pediatrician and she informed me of the same thing.  On and one this went, ER to MD, for 8 months.  They admitted him into the hospital when one of the other doctor's heard his cough and thought that it might be whopping cough.  Well a week later we were discharged with acid reflux (GERD).

For 2 more months this went on, with gastoentrology and medicine added into this, and during this time we decided to video tape these spells so the pedi's could see that he was doing this not only eating but sleeping, playing, etc. After another trip to the ER and almost getting into a fist fight with the attending after I showed her the video tape and she proceeded to tell me it WAS just acid reflux and I was over-feeding my child, not thicking his feeds, etc, etc. I started calling ALL the doctor's. Finally my GI doctor had me come in for an upper endoscopy.  When she came out she stated that she had good and bad news.  The good news was that she cleared him of GI at that point, but there was no way she was letting him go home.  He did one of his spells under sedation and she was terrified.  So another week passes in the hospital and I think after EEG's, and all sorts of other tests were done, a bronchoscopy was done and this time it was lyringomalsia, a softening of the larynx that was suppose to heal around 18 months.

I like to say at 18 months this ended but it didn't.  As soon as 18 months hit I called my pedi and on top of all the other doctor's I was seeing, I now got ENT added.  He ordered tests but thought it was GI so back to GI I went and they said it was ENT.  In the meantime a sleep study was done and it was not good to say the least and he actually had a good night's sleep compared to others.  He hap sleep apnea with his lowest O2 reading going to a 67.  My ENT said it was the worst pedi sleep study that he has seen in about 4 years.  So now at 20 months he just had his adnoids which were almost completely blocking his nasal airway and large tonsils removed.  His O2 levels when he's awake, in the hospital anwyay, are very good but they still go down when he sleeps.  He now goes down to 88 O2 sat which still ian't good but better than before.

By the way I went to an allergist on my own accord and the minute I walked in the door and saw him "cough" he said he needed his tonsils and adnoids out knowing nothing about him and not even being in that specialty so there are GREAT doctors around.

I hope somewhere in my actually shortened version you find your answer.  You just have to be persistant and do not take what each doctor says as the truth because usually there's a little truth in what they all say.  I love my pediatrician, GI, ENT and allergist.  It's just unfortunate that sometimes things take longer when something isn't presenting as textbook and they don't have time to consult with each other.  You're the mom.  You're the one with them 24/7.  Hopefully this surgery will end my saga. You will be in my thoughts so please post an update when you get one....
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