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6-Yr Old w/ Frontal Lobe Heterotopia
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6-Yr Old w/ Frontal Lobe Heterotopia

My son ( 6 )was just diagnosed as having two small ( 5 millimeter ) heterotopia in the right frontal lobe. Unfortunateley, there isn't very much specific information online about this condition. How can I find out what type of problem he might face down the road? Can you recommend a helpful resource on this topic?
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Don't have any specific reading recommendations.    Heterotopias may go unnoticed for years and years -- we've seen people in their 40s with incidental heterotopias, who've been normal otherwise.   There are, however, concerns over potential for seizures (is that why your son had the scan in the first place?) as well as difficulties with behavior, personality and organization of thoughts / actions.    One can't predict who will go on to develop these and who would not.   I would say be vigilant in his early years but not overly so - don't overread problems as he may be appropriately facing what most kids of his age would be.   But if something comes up, seek help from a pediatric neurologist and behavioral therapist, if needed, as soon as possible and act on it.




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My son seem to have the same condition. I posted a mesage in Notes
Veronique
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Hi,

Please check the links below they may be helpful for you.
http://en.wikipedia.org/wiki/Gray_matter_heterotopia

http://ghr.nlm.nih.gov/condition=periventricularheterotopia

http://www.neurology.org/cgi/content/abstract/55/11/1603

Thanks



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