NEUROLOGY COMMUNITY
ADEM RECOVERY

ADEM RECOVERY

I was diagnosed with ADEM about six weeks ago..

I was hospitalized for 3 days and given massive IV's followed by a decreasing dosage of prednezone for 12 days
Overall I have seen a gradual improvement regarding the numbness in the last month.  When I left the hospital, I was completely numb in both feet, my right leg, my groin, stomach, hips, lower back and both sets of fingertips.  Over the past three weeks, the numbness had dissipated to where it was restricted to my right foot, my right knee, my fingertips and my stomach and in these areas, the numbness seemed less pronounced.  In addition, I had dramatic fatigue after leaving the hospital.  The fatigue, while still there, is not as severe as it was a couple weeks ago

However, I did notice over the past few days that some slight numbness has returned to my left foot and at the base of my testicles...2 areas where the numbness had disappeared.  Please understand that it is not nearly as severe as it was when I left the hospital but quite obviously I am concerned in that I am feeling numbness in areas where it had disappeared.  Please know that this followed me walking a considerable distance, about 3/4 of a mile.

My question is whether these ebbs and flows of numbness in certain areas should be expected as part of the recovery process or whether the return of numbness to my left foot and groin is indicative that the conditioning may be worsening again.

I would greatly appreciate a call or return E-mail to discuss this.

Thanks and Best Regards,
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