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Neurology (Expert Forum)
ALS or cramp fasciculation syndrome
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.
ALS or cramp fasciculation syndrome
by soson, Mar 01, 2005 12:00AM
Dear sir
please excuse me if my english is not very good, I am not used to speak it.
For about 1 year my husband is suffering from cramps and fasciculation all over his body. The fasciculations appeared first of all in the arms, afterwords leggs and rest of the body except for the face.
After several examinations by several doctors they can still not make the diagnose ALS. Next week they start a treatment with immuunglobuline for MMM (Multifocale Motore Neuropathie) but the profesor is not convinced because there is only a light augmentation 1/40 in stedd of 1/20 in his blood.
The symptoms are stabil for almost a year. My husband lost 10 kg of weight and lost a lot of his power in his arms.
Please give me your advice.
Does cramp fasciculation syndrome exist because doctors never spoke about this syndrome.
Thank you very much
Soson
please excuse me if my english is not very good, I am not used to speak it.
For about 1 year my husband is suffering from cramps and fasciculation all over his body. The fasciculations appeared first of all in the arms, afterwords leggs and rest of the body except for the face.
After several examinations by several doctors they can still not make the diagnose ALS. Next week they start a treatment with immuunglobuline for MMM (Multifocale Motore Neuropathie) but the profesor is not convinced because there is only a light augmentation 1/40 in stedd of 1/20 in his blood.
The symptoms are stabil for almost a year. My husband lost 10 kg of weight and lost a lot of his power in his arms.
Please give me your advice.
Does cramp fasciculation syndrome exist because doctors never spoke about this syndrome.
Thank you very much
Soson
Doctor's Answer
by CCF-Neuro-M.D.-PW, Mar 02, 2005 12:00AM
I can not give a clinical diagnosis on the internet without seeing your husband or his test results.
If he has weakness in his arms, then this is less likely to be associated with benign fasciculation syndrome (this disorder is real but does not have muscle weakness or wasting, and the fasciculations are more widespread from the onset).
Several conditions can cause muscle weakness and fasciculations - pinched nerves or nerve roots, ALS, multifocal motor neuropathy (less so), some inflammatory diseases, some viral infections of the spinal cord (eg West Nile and others). Stability of symptoms for a whole year would not be typical of ALS.
Multifocal motor neuropathy is diagnosed by nerve conduction studies and clinical presentation - the antibody tests are a supportive finding - so I do not know what other evidence your husband has of MMM. This is a condition that can look like ALS, but the nerve tests and antibody tests should tell the difference.
Good luck
If he has weakness in his arms, then this is less likely to be associated with benign fasciculation syndrome (this disorder is real but does not have muscle weakness or wasting, and the fasciculations are more widespread from the onset).
Several conditions can cause muscle weakness and fasciculations - pinched nerves or nerve roots, ALS, multifocal motor neuropathy (less so), some inflammatory diseases, some viral infections of the spinal cord (eg West Nile and others). Stability of symptoms for a whole year would not be typical of ALS.
Multifocal motor neuropathy is diagnosed by nerve conduction studies and clinical presentation - the antibody tests are a supportive finding - so I do not know what other evidence your husband has of MMM. This is a condition that can look like ALS, but the nerve tests and antibody tests should tell the difference.
Good luck
