I have recently been diagnosed with an acoustic neuroma. The neurologist has ordered another MRI with contrast done with closer cuts to determine a better indication of the size. I am also going for a lumbar puncture under fluoroscopy to determine the the amount of inflammation. So far I have had three MRI, loads of blood work, full neurological exam, and now the spinal tap. I feel my symptoms are getting worse and fast. I presently have some balance problems, ringing in ears, right pupil dilated under normal light, can't taste many foods, difficluty drinking, difficulty sleeping, facial numbness and pain, although the pain is regulated with Trileptal, and have a tremendous amount of fatigue. I am having problems chewing and drinking and have just gotten back from 2-days in the hospitqal due to extreme stress and dehydration. The dietician in the hopsital gave me some pointers on how to maintain my fluid levels and eat a more balanced diet with my decreased sense of taste. My main concern is the extreme fatigue I am feeling along with the increase in symptoms. Is this normal for this tumor? I have a hard staying awake for long periods of time. I am trying to remain optomistic but it is becoming increasingly hard. thank you.
Trileptal is well known for causing fatigue and sedation in many of our patients who take the medication for epilepsy, facial pain and numbness, or other reasons. It's possible that the tumor has a role as well as stress, but I would be more inclined to attribute the symptoms to the medications. One thing you could try is to lower the dose or try another med such as elavil, an antidepressant that helps with facial pain. Talk to your docs about your concerns and possible medication adjustment. Good luck.
Thank you very much for your input. I will certainly talk to my neurologist prior to the Spinal Tap on January 7th. My anxiety level is lessened in regards to the whole tumor thing because I feel as though we are closer to a point of closure. The fatigue is still somewhat bothersome as I am unable to drive myself anywhere. It seems that I am unable to focus well enough to drive and therefore am a bit of a hazard on the road. Teh headachea are a bit extreme at times and that adds to the inability to drive. Thank you for your patience and help. Your service is greatly appreciated. I only wish that you were closer so that I might receive treatment at the Cleveland Clinic.
Copyright 1994-2017MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.