Acute disseminated encephelomyelopathy

Posted By Kimberly Stacel on August 25, 1998 at 22:59:06:







My 28 y.o. adopted sister was diagnosed with ADEM in October of 1997.  Today,in August 1998 she is still modearatly to severely disabled(esp. frontal lobe problems-reasoning etc.)  My question is threefold...1)Are there any documented cases fo people who had recovery that took longer than the nine month time frame in my sisters case and to what extent recovery? There are still myelin lesions present.  2) A causative agent has not been identified.  Two months prior to the ADEM,there was an emergency room visit where she was horseback riding and had a first time allergic reaction where her "eyeballs popped out of her head"  .  Could this be related. 3)Also approx. 5 years ago, there was a Cytomegalovirus infection hospitalization.  Any correlation? Any information,studies,feedback would be greatly appreciated.



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