Re: Alternating hemiplegia of childhood
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Posted by CCF MD on November 05, 1997 at 16:43:20:
In Reply to: Alternating hemiplegia of childhood posted by Becky on October 05, 1997 at 01:16:31:
: My son, now 6 years old, was diagnosed with
partialPartial (focal) seizure
Partial thromboplastin time (ptt)
Thyroid gland removal seizures at age 14 months. He did pretty well the next two years while on
phenobarbitalPhenobarbital
Phenobarbital sodium. Since that time, he has had increasing "seizure" activity which was treated with
tegretolDrug rash, tegretol
Tegretol
Tegretol xr and
depakoteDepakote
Depakote er
Depakote sprinkles. His seizure activity continued.
EEGs have never shown epileptic waveforms. In July, he had an
EEG and developed nystagmus and mouth sucking during photic stimulation but no epileptic waveforms were noted. The next day
he had a video EEG with him having 3 episodes that we had been calling seizures. Again the EEG did not show epileptic waveforms. After his seizures, my son would often experience weakness on one side of his body. These episodes have escalated to sometimes as many as 10+ a day, although on a rare day, he will have none. He was then diagnosed with alternating hemiplegia of childhood. He pediatric neurologist would like a second opinion from someone who has treated a
child with this disorder. We were originally going to take him to Detroit Childrens Hospital but feel that the six hour drive would be too much for him. Since Cleveland is much closer to us, we are wondering if any of your staff have cared for a child with this disorder. He also is developmentally delayed. Thank you.
====================================================================================================
Sorry about the delay. AHC is a known disorder that may be a rare variant of complicated migraine. Most children develop symptoms
prior to age 3 years. Sz occur in some cases. The attacks may be very disbling and may be bilateral.
Flunarizine a selective calcium entry blocker has had some success. Since this is rare few cases have been documented.
For reference see Adermann, F., Aicardi J., and Vigevano 1995 (eds.). Alternating hemiplegia of childhood. Raven Press, New York.
If you would like a second opinion from one of the CCF neurologists call the appt desk at 216 444-5559.
This information is provided for general medical education purposes only. Please consult your physician for diagnostic
and treatment options of your specific medical condition.