Any help would be greatly appreciated.

Ok this will be a little long but it has to be for you to get the full picture. At this point I need all the help I can get. Ok about a year and a half ago I got very sick. Sick enough that i took myself to the emergency room for help. Symptoms were very tired, weak, pouring sweat, freezing cold to the point of shaking with no fever, neck pain and serious head aches in the back of my head. I was there for about 24 hour while a couple doctors tried to figure out what was wrong. I was tested for everything but Lyme.They couldn't figure out what was wrong so I left and went to my normal doctors the next day. She said I had pavo virus, gave me a week of antibiotics and sent me on my way. After the week of antibiotics I was back to normal. About a month later my legs went numb. I called and told my doctor and they said it was probably due to my bad lower back. She said don't worry it should go away. It didn't and I sad to say let it slid for about a year. Thinking the whole time its my back. Eventually I got used to it and actually had to touch my legs to see if they were still numb. Aout 3 months ago my legs got really bad. They were numb to the point that I couldn't ignore it. Along with the numbness I also had stabbing pains, pins and needles, hot iron burning pains, daily head aches, neck pain, knee pain, I basically felt like I had been run over by a truck every day. I couldn't sleep any more and was and still are totally exhausted. Oh yeah the location of my numbness and pain are on my thighs from above the knee to the top of the leg below my groin area. So I go to my doctors and all she wanted to hear about was the legs and none of the other symptoms. She takes my blood and sends me for an MRI. Before I get to my MRI they call and say I tested positive for both types of Lyme disease from a Western blot test I think. So they give me two weeks of antibiotics. I get the MRI to find out I have a compressed disk and arthritis in my back. But nothing is pushing on any nerves. I also haven't had any back pain in two years. When the antibiotics were done I actually had no numbness, pain or anything in my right leg,that leg was fixed. In my left leg the pins and needles and the burning had stoped. But it is still numb worse than ever. I have crazy pains all the time stabbing and shocking me in that leg. I am dead tiered all the time like I just cant go on. I cant sleep and I still have neck pains and head aches. When I tell this to my doctors theyrefer me to a poison and disease doctor she listens to this story after five minutes and says. I didn't think you have Lyme anymore. Lyme disease is so easy to cure and the meds you took should have taken care of it. So she says she is going to refer me to a neurologist. The neurologist cant see me for 3 weeks. Its been a long 3 months of pain and torture. After reading on the net for two days about chronic Lyme disease. I'm almost the poster child for it. I have almost all of the symptoms. I also live in a town where there has been almost 200 cases of Lyme this year alone and I work out side doing landscaping in the same town. I cant take the pain, not being able to sleep and being dead tired all the time any more. So that's my messed up story. Sorry for it being so long. So i guess my questions are this.

1.) Will a neurologist get to the bottom of it, and be able to help me?

2.)Should I find a better doctor, get a second opinion?

3.)Is it just me or is it blatantly obvious that I still have Lyme disease? I'm no doctor but if i were I would have ordered another test after the antibiotics didn't work.

I live in new Hampshire on the border of Massachusetts. I have been contemplating not waiting for the neurologist and just driving to Boston to one of the big hospitals to find someone that cares and can help me. I need to be able to work in order to take care of my family. They depend on me to be there for them. I'm so tired from not sleeping and being in pain its starting to show in my work and I'm afraid I'm going to get fired.

[Jodi5868]

For Lyme disease, I THINK you would go to a rheumatologist. And, it doesn't always just go away. It can come back, flare up, and make people really sick. I'd look online for a dr that treats Lyme disease. Or, go to a teaching hospital, big medical cneter where they have dr's with different specialties. Like, I live in NJ. At Robert Wood Johnson Hosp, if you see a neuro, the records go into the computer. So when you see their rheumatologist, all the info is there for them to see..... better communication between the dr's, only 1 place to go for the multitude of appointments!

I've been on a 10 month roll of dr's, treatments, pills, opinions..... realizing  that some things are extremely difficult to diagnose!!

I have numbness, tingling, pain on the right side, arm and leg, they have found several things with tests, but those things are symptoms so no diagnosis. I really do understand how you feel. Some days I want to just go to the ER and say I'm not leaving until someone figures something out. Living in pain is not living.