I have been having alot of symptoms since Dec 05. I've had MS ruled out and other stuff and had numerous blood tests. I get on a daily basis tired, achy, tingly and burning leg sens. It can make mobility quite difficult. I have power but i am unsteady and when i take steps it feels like i'm going to fall.
I have no idea why this is and so therefore am getting no help with it!
Any ideas? I would love to get back to work but this symptom really stops me doing alot.
How are you? Most people get tired, aching legs at some time in their lives - usually from standing or sitting for long periods. Those most likely to suffer are people who stand a lot without exercising their calf muscles, for example shop assistants, hairdressers and nurses. Even long-distance travel can cause discomfort and potentially more serious problems such as deep vein thrombosis.
When you walk or run, the calf muscles in the legs help to pump the blood in your legs back to the heart. However, during long periods of inactivity, blood can pool in the veins of the leg causing a feeling of heaviness and sometimes swollen ankles. This in turn can lead to aching and tiredness. If these symptoms are allowed to persist over a period of time, it is quite likely that varicose veins will develop.
The other causes could be iron and vitamin B deficiency, peripheral neuropathy, diabetes, alcohol abuse etc.
Discuss these possibilities with your doctor and follow his advise.
Hi. Just thought I would tell you that I had a similar problem last spring. ( I also have IIH) It seems my folic acid levels were very low. My dr had done simple blood tests and found a B6+12 deficiency and had started me on B injections but I was not feeling any better. Further tests showed the folic problem and after taking the appropiate meds I felt better in a month. I hope your problem can be fixed as easily. cath278
It's def more than just tired legs. It's been getting worse and i am really struggling to feel the floor properly. I have a major problem with weight bearing and not feeling a solid floor, this makes mobilising near impossible and gives me tired, achy, shakning, throbbing, tingling, burning legs. The more i walk the worse i feel!
Something is def not right. I'm 30 feeling 80! It's no fun sitting all day!
Cath278- I have had a load of blood tests. Wouldn't they have picked something up then?
I'm statred to think i do really have MS and the neuro didn't pick it up in the early stages!
I feel the same as you do. I have had a multitude of tests and everything keeps pointing back to that dreadful disease that I will not name. Do you have any other neurological symptoms? If so, what tests have you had done. Since you are a nurse, I am sure you have probably had a battery of tests. Hang on in there beceause I have been going through this for almost 6 months. My EBV titers are high and I am Vitamin D deficient. I am having a hard time getting good medical care. I hope you start to feel better soon. I would love to chat with you. You are certainly not alone in this battle.
Yes, I have had lots of tests. But they were all 3 years ago! I had from feb til nov feeling 80% better. Have had some from of episode (relapse) now feeling worse than ever.
I've had MRI-brain x 2, one with dye. Showed non-specific white spots. Spinal MRI- think ok as neuro consulatant said ok. Want to know exactly what it said. EVP-normal.
But hd all this with initail onset of symptoms. Things have progressed so i'm awaiting 2nd op. The first neuro i felt wasn't very helpful and considerate.
Mainly, balance probs, unsteadiness, altered sens when i take steps, tired, throbbing, tingling legs, also this in lower back and burning in the neck, fatigue, brain fogg, not feeling with it, when it's very bad my body pulsates and struggles to hold me up.
Just awaiting to here what the next neuro thinks. I will not be fobbed off.
hi, sorry to see someone in the same situation as myself now for a year, legs that get so weak and tired i have to do all i can kneeling or sitting on a bar stool. one leg worse and gets numb from standing on it after a few mins. was perfectly healthy and lived a totally healthy lifestyle untill a chest infection left me holding onto furniture with leg weakness that didnt go for weeks. i live in a country with socialised medicine and waiting lists are months long,test results are not discussed, if bloods are ok at the emergency room your diagnosis is a virus,it will pass. my family have had to help me save my house as my business went down the drain waiting for the "virus" to pass. ms runs in my family so i had to go private and pay for everything, am now facing huge medical bills, no diagnosis yet, not able to work in the foreseeable future and increasing leg problems.Its just not fair how junior docs are allowed to make decisions that effect our lives so badly and leave us to get on with it.i hope u get some answers without getting into debt like me.
Great name! That's me to!
Very sorry to hear your suffering and having to wait a long time for help.
I was like you perfect picture of health before. Very active, in the gym loads and had a great career ahead of me!
I'm the same as you spend my day leaning and sitting mainly. Crazy!
My leg symptoms are def getting worse so i know it's not good whatever it is.
So does persistant weight bearing make you worse? Do you have altered sens in your feet so they feel odd when you make contact with the ground?
Great to chat to you! What coutry are you from? I'm from England but still non the wiser.
i'm from ireland, hence the terrible two tier health system, but once you go private you pay for everything! Once the initial awfull weakness and heaviness went i am left with a leg that you think was climbing a mountain when its only keeping me up same as the other one. Does get worse as i try to keep going and feels as if i have sand in my shoe at times. If i exert myself at anything for more than 15 or 20 mins at atime i get awfull weak and exhausted and have to sit for an hour to recover. i never get dizzy or light headed so i dont think its heart related. I'm older than you but was fitter and happier with my lot in life than a lot of 25yr olds are mostly due to making healthy choices and didnt ever cost the health anything due to wreckless living habits.Its devastating when they dismiss something they cant see or feel and in the same room people who choose to become unhealthy by smoking ect are getting the best of the services available. Trying hard to be positive and that it will pass but some days its tough.
I am having a multitude of symptoms that all started after a bad viral infection in July. I have been experiencing tingling, numbness, tinnitus, muscle twitching, aches and pains, etc. I am tired of living like this and just want my life back. My neuro has sent me for a battery of tests, mris of the brain and cervical spin, bone scan, EMG/CMV, EVP, spinal tap that was + for myelin basic protein, but (-) for oligoclonal bands. I can't help but think this is that dreadful disease and that the doctors are just waiting for something else bad to happen. I hate living like this. I have been to every specialist known, except the rheumatologist and I have an appt to see him within the next 2 weeks. I pray that I can get some answers soon.
Definitely a nutritional deficiency, I have had this problem for the past 10 years on an off, and everytime it happens they do blood work and discover that my iron levels are low, my hemglobin is low, folic acid is low, vitamin A, D, Ec, and calcium, etc. When These levels are in the normal range I don't have any problems with my legs, I've been using the tired/aching/sore legs as my barometer for years to know when my levels are going low and it's time to get checked out.
Not too sure about that although it is a possibility, I have the same problem currently with my legs. They feel very achy, weak and tired. Kinda the feeling yours legs get after you've been running. But I haven't been running. The smallest distance affects me, we went out to eat this morning and I got up to go to the restroom, I thought well I don't think I'll be able to walk around in wal-mart feeling like this. So our groceries had to wait for another day. All this happened following some dental work, in had an already root-canaled tooth re root-canaled. Then it got a post open infection a couple days later. It was awful I had taken 4 different antibiotics before it was all over. Ended up feeling like the infection was going through my entire body, ALL of my muscles just ached and I was just so exhausted and frustrated, each morning I would wake up feeling worse instead of better I had to take a leave of absence from work because I had sunken into such a bad depression an started having panic attacks daily. My blood work came back OK except my neutrophils were a little low and my hematocrit was actually a little high. Vitamin D level was OK electrolytes were all fine.
NIFTA, I'm glad you brought this somewhat older thread up! I have the same thing, and I've been diagnosed with peripheral neuropathy, which was brought on by chemotherapy. HOWEVER, I had problems with my legs and feet even before cancer, just not quite as bad. Instead, they diagnosed me with Restless Legs, and that my feet were just sore from my shoes.
As it turns out, in the end, I had two things wrong with me that I didn't connect up. One was possibly a vitamin/mineral deficiency, as I have diff ones at diff times. Also, the other thing wrong is my lumbar spine problems. It hurts a lot, very sharp, shooting pains. Now, this back problem has been with me most of my life, but when I was younger, I just pushed through it, it was a thoracic spine injury from a car wreck. But since my spine was compressed and off-kilter, in that accident, eventually it crashed down into my lumbar spine, which I have breaks in those butterfly bones off the back, and they call it facet joint syndrome..
In the end, I am personally convinced that several things contributed to my legs and feet feeling painful, numbish, swelling, hurting from just getting out of bed, reddish, legs can barely hold me up, and the grocery store makes me feel like I'm 100 years old, and I don't know how much longer I can go thru the store, a must every two weeks. Hiring someone is too expensive. I say this to also illustrate how you all have done, in a manner to show how restrictive these legs and feet problems are.
But I think uneven eating habits, the chemotherapy, and first place is a lumbar spine problem of some kind. I went to an emergency room and I was in pain, and I asked them to X-ray my lower back, that I couldn't afford a scan. So, they did several views, put it on a computer disk, and I was able to view them myself. And I saw a few things I'd really like to ask a doc about. Eventually I'll go to an orthopedist and let him scan me and show me the pictures of what he sees, and I can ask him about what I SEE.
I'll try to keep up with this thread again, maybe we can toss it around for awhile with some new people who have this. GG
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