First of all, it's important to know why you have severe myelomalacia of the spinal cord. Second, when you say "ongoing chronic denervation", does that mean that's it's active on chronic disease or really just chronic changes seen on the EMG. Third, would need to know when your surgery was. If the denervation is still active and it's been a while since yours surgery, then something is going on that may need further evaluation such as compression of the nerves. Carpal tunnel syndrome is also a possibility, but this should have shown up on the EMG depending on how extensive it was. An MRI of the spine or CT myelogram may be needed to evaluate the cause of your symptoms. Talk to your doctors, and consider bringing your films for a second neurosurgical opinion. In the meantime, neurontin is a medication that has helped people with nerve pain. Good luck.
I too am having my first EMG tomorrow. I have C5,6,and 7 problems. I have a herniation from an injury and bulges.
Lately i have experienced left shoulder, arm and hand pain along with weakness off and on. My fingers sometimes get numb as well. My upper back pain is bad and sometimes it feel as if I cant breathe due to a tightness around the "bra line". I had a myleogram on my cervical and this showed my herniations.
now then,...over the last week,..just one of my toes,..the middle one is constantly numb. Ive had no shoes on,...for Ive been pretty much bed ridden with pain.
Im hoping my test will show something tomorrow,...for this pain in my high upper back, neck,..and now my left arm is really getting to me.
Can anyone help me on what I might expect?
I would appreciate any help.
thank you,
Have you had your cervical spine checked out? Have you been to a neurologist?
Many of the symptoms you describe can happen with a cervical disk protrusion. If you look at some of the other posts from patients with known disk problems in this area of the spine, you may see some overlap with your symptoms. If you had the epidural during labor (as opposed to some sort of surgery) there's always the possibility that the link to your symptoms was labor itself, not the epidural. There's a lot of straining of the spine during labor, and it can precipitate problems if there is an underlying vulnerability within the spine. In particular, if the accidents you mentioned happened before this, the accidents may have created some sort of musculoskeletal problem that set things up for a later re-injury.
There are two broad categories of straining which can be dangerous to a person with just the right (wrong) underlying spinal disorder. The first is the position of extreme flexion you're in during the active, pushing stage of labor. Most women still deliver on their back, with their spines and legs curled up, neck tucked forward. You rarely flex your spine as much as this in normal life, and in some women this can be just the right stressor to push on an already lax ligament or fragile disk.
The other type of straining is the rise in intracranial pressure (transmitted from intraabdominal pressure) that happens when you hold your breath and bear down, which also is a part of the pushing phase of labor. There are certain spinal cord and brainstem abnormalities that can be silent until this kind of precipitant pushes them over the edge. Those are generally felt to be rare, but rare doesn't mean never.
But that's basically speculation, without knowing the circumstances of the accidents or the epidural. There are possible complications from the epidural too. Because the epidural is placed in the lumbar area, the complications I'm most familiar with tend to also have symptoms affecting lower areas of the spinal cord/nerves, but I wouldn't want to say this is an absolute thing. You said the epidural was complicated — it would be important to know what kind of complications.
The main thing is that a cervical spine abnormality is one of the things that could be causing symptoms like the ones you describe. So, just speaking as another patient, that's where I'd want someone to look if it were me. For an answer by the MD's running this page, you can re-post your question separately (they won't see it if it's within someone else's post).
Another thing to think about is carrying the baby itself (again, I don't even know if there is a baby — you may have had the epidural for, say, knee surgery). I don't mean to say that this is a perfect fit, but sometimes carrying a baby (usually on the left side, for most women) can bring out problems due to mechanical compression of nerves and/or blood vessels on their journey from the spine to the arm. The most well-known of these is called "thoracic outlet syndrome." Again, not a perfect fit to what you describe, but just thinking of problems for which the timing could coincide with the epidural.
Good luck,
Annika
Any ideas about what is causing it and possible cures?
Thanks, Lynn