Arnold Chiari type 1

My husband who is 34 years old just got diagnosed with Arnold Chiari type 1. He is always in a lot of pain, headaches,neuropathy pain,tingling and on right side of body and toes, burning sensations on hands and toes,muscle pain and mucle locking etc Can you tell me how I can get his physician to treat him? I also would like any information that could help us. Does this disease affect your learning? Where does it come from? What is the prognosis for this disease? Thankyou.

[crwstar]

Hi, I know nothing about this Arnold Chiari but wanted to let you know there is a forum on here specifically for this. Have you posted there as well?

All the best,

Cwstar

[booluvschoco]

hi,my husband has arnold chiari malformation too,he found out at the age of 36,he is now 50 and we have been through so much from  that time on,my email is ***@**** and my name is carolyn, Im not a doctor but a wife who has been through two surgerys and about to have a third,email anytime,I can only tell you what we have been through and what doctors we have used,best to you and your hubby,Caroline