Arnold chiari malformation/Pressure

[jeany4408]

I have arnold chiari malformation,I had my surgery on march2010, i'm still feeling the same headaces,dizzines,tingiling numbness in my hand very painfull around the incision area. I went tosee the dr. acouple of time he said this is ok. and my mri's show just a little of fluid. My concern is that for the pass couple pf days I'm feeling lots of pressure behind my head, and my throat ,and left side of my face,also couple days ago my fingers of my hand got paralyse for like an 1hr and 30 min. Should  I be concern?   thanks

[Dr. A. Srivastava]

Hi, Thank you for your question. In Chiari malformations, the pressure in brain increases which manifests itself as dizziness, diplopia (blurring of vision), migraine like headaches, muscle weakness, facial pain, hearing problems, and extreme fatigue. Sometimes this malformation causes dizziness while working with hands above the shoulder level. Treatment of Chiari malformation depends on the form, severity and associated symptoms. No treatment is required in asymptomatic cases other than regular monitoring. Symptomatic patients may require surgery (posterior fossa decompression surgery). The requirement and pros and cons of surgery in your case should be discussed with your doctor as he knows the severity of problem. Hope this helps.

[selmaS]

Hi...I had my PFD a yr ago this past May, the surgery is by no means a cure and it is possible to have lingering symptoms.

I feel the 3 month time frame is when everyone seems to begin to feel their symptoms again....this is the time u should be stepping off the pain meds from surgery.

As for the fluid, did they tell u to lie flat, drink plenty of water and caffeine?...if u have a small leak, it can/may correct itself...so do try this...lie flat for at least 4 to 5 days...I know it is no fun, but can help.

The weather outside can also feed in to the pressure HA's u r having.

Plus, what have u been doing?...go slow, take it easy.

I do hope u join u sin the chiari forum : )

"selma"

[rod44]

Hi we have a Chiari Forum on here.......http://www.medhelp.org/forums/Chiari-Malformation/show/257

You will get good support and answers from other Chiariins

I think you need to get this checked, can you get back to see your NS, you may need to push to get him to see you but it would be safer.


Ray