Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Neurology (Expert Forum)
Autism and seizures
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.
Autism and seizures
by Carol__0__0, Sep 19, 1998 12:00AM
I just read a post of May 26, 2997 re: autism and seizures. I have an autistic 35 yr. old son. He had his first seizure at 19. It was a grand mal. 8 yrs. later he starting having a different type (don't have a name)
He takes tegretol and depakote. This summer he has ad 3 more it's been 8 yrs. again. This last one was a grand mal. We spent 4 hrs. in ER. He had fallen on concrete! His blood level of tegretol was only 3.7. We called his dr. and waited all day Friday. Even called his service that evening and ask the dr. on call to call us. NOBODY called. I think this is serious. We are afraid to let him out of the house. I don't think it takes a rocket scienctist to know he needs a medication adjustment, but why don't drs. return calls?? I can't tell you how many hrs. we have waited for some dr. to call regarding serious matters. Can you recommend a neuologist at the Clinic who would care enough to response in these times.
I am beginning to have serious doubts about this one. Thank you Carol
He takes tegretol and depakote. This summer he has ad 3 more it's been 8 yrs. again. This last one was a grand mal. We spent 4 hrs. in ER. He had fallen on concrete! His blood level of tegretol was only 3.7. We called his dr. and waited all day Friday. Even called his service that evening and ask the dr. on call to call us. NOBODY called. I think this is serious. We are afraid to let him out of the house. I don't think it takes a rocket scienctist to know he needs a medication adjustment, but why don't drs. return calls?? I can't tell you how many hrs. we have waited for some dr. to call regarding serious matters. Can you recommend a neuologist at the Clinic who would care enough to response in these times.
I am beginning to have serious doubts about this one. Thank you Carol
Doctor's Answer
by CCF Neuro MD MJD, Sep 19, 1998 12:00AM
Thank you for your question.
Although, seizure control is often difficult, it sounds like you have a more important issue - lack of trust in your doctor. Certainly, you should feel comfortable with your doctor. The Cleveland Clinic has an excellent epilepsy group. Remember, your current doctor knows your son's history better, and your new doctor will have to repeat the history and maybe some tests before formulating his/her impression. But if you're not comfortable with your doctor, these are minor issues.
There are several epilepsy doctors who could be of use. I don't know their availability, but call 1-800-CCF-CARE and ask for an appointment - tell your son's age and other history. They'll be able to give you the earliest appointment.
As always, this should be used for informative purposes and does not substitute for seeing a doctor for therapeutic or diagnostic reasons
MJD
