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Basilar Artery Migraine treatment;management

by need your advice, Jun 07, 2007 12:00AM
I have had moderate to severe daily headaches with migraines for 10 years or so.  I had Arnold Chiari Malformation cranial decompression surgery in 2001-and I had NO headaches for 2 years-not even a little nagging one.  Then about 4 years ago I began having migraines again.  I would get an aura (blurred vision-almost like a film comes over my eye-it lasts just a few seconds but continue to come and go) we tried all of the abortive meds-Imitrex pills, sprays, injections, Maxalt, Zomig, etc.  None of them worked for me. We have also tried beta blockers, calcium channel blockers, etc.  I was given Zonagran (an anti-seizure med) to see if it helped control the migraines.  After 1 dose I went into anti-phalatic shock and needed to be air flighted to the hospital.  Since that episode my body seems to be untra-sensitive to meds and I have had several small reactions to meds.  I am now going to a Headache clinic and working with the neurologists there.  It is frustrating because the migraines are dibilitating and I am a professional woman.  They are affecting my ability to speak-I can't find the correct word and when I do it comes out all wrong.  I have began to have pins and needles sensations and numbness in my face, lips and now down arms, hands, feet and legs.  The doctor said we needed to rule out a drug reaction to Keppra first, but he suspected Basilar Artery Migraine.  What do you think?  I guess my biggest question would be about treatment.  I did do a bit of research on the type of migraine and the "typical" treatment that I read about (anti-depressants;beta blockers; calcium channel blockers, and anti-convulsants)  I am already taking (I am currently on: Cymbalta, Nadolol, Neurotin, {reacted to Keppra, and Verapamil, Nardil, Topamax, Frova)  I am also taking Lasix and just stopped taking Diamox a few months ago (Psudotumor Cerebri that is now resolved??)  So what do you suggest I do now?  I am on the verge of losing my job due to missed work.  I am at the end of my rope with all of the medical bills and frustrated because after a year of specialized treatment and 3 inpatient hospital stays to try to resolve these issues-I am now experiencing more symptoms, and my quality of life is deteriorating.  Please advise me on what to do and what to realistically expect from my medical team.
Thank You!!
Member Comments (2)

by sky100, Sep 25, 2008 05:17PM
To: All
Perhaps you have Fibromyalgia which tends to have all these symptoms and which they say can be from MSG consumption. I love Chinese fast food but at this time I wont go there anymore...they always have signs no MSG but my throat swells and I get my eyes get puffy and I start with hives right away before I even get out of there lol. Its not funny but it is my life. I was diagnosed with Fibromyalgia, and they kind of suspect MSG consumption to be a part of this whole syndrome. I was given Lyrica which works wonders and all my muscle pains and stuff went away I was getting severe headaches and the likes as my daughter was have your doctor look into that I think alot more people have that then we can imagine.

by sky100, Sep 25, 2008 05:21PM
To: All
I was going to say that the treatment can be expensive, Pfiier does have two programs that can help moms like me that dont fit anywhere make too much money, and dont make enough so here you go check their website you have to make under $34,000 per year and I thought I never qualified for anything that I could get free,,,so check this out they are very, very nice people thank you.
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