Can anyone advise, for the past 2 years i have this feeling that my head was under water,pressure in my head, i then started to get migraines, from that i am now getting constant tinnitus and also alot of vision loss in right eye. I had a lumbar puncture and they said my result was high ( 27 ) but my nerologist said its not high its fairly normal although everything i am reading says the contrary. I feel as though my vision will just go in a split second and when i hear loud noises with my eye shut i see bright flashes, i have headaches every day now but no one seems to be taken it seriously. my MRI scan came back normal but i am at my wits end.anyone know what it could be?
I know many lymies who have simlar symptoms. I also had head pressure, dizziness, eye issues and tinnitus.
See the symptom list far below. (This is only some of them...there are really more than 70.)
The key to getting diagnosed properly is the doctor. I had a terrible time back in Feb-April of 2010 with weird symptoms, dizziness, anxiety, forgetfulness, brian fog, twitching, etc, etc. I had dozens of tests, including a lyme ELISA test...all normal. I was told it was stress, that I had a somatization disorder, and told to go on Prozac and seek therapy. I"m only 35!
I then found another doctor who happened to be an ILADS trained LLMD (Lyme Literate MD). SHe did a Western Blot test from a lab called Igenex. I came back highly positive for lyme and some "co-infections" (Bartonella and Babesia.) I never had a rash nor do I remember a bite. Lyme is in all 50 states.
I'm now in treatment and am 90% better! I have a few more months to go.
Just a word of caution...lyme is very controversial. The mainstream doctors and infectious disease guru's deny that Chronic Lyme exists and feel it is easy to diagnose with good tests and easy to treat with 2-3 weeks of antibiotics. This just isn't true and there have been no double blinded studies to show that lyme is eradicated from the body with a short course of antibiotics.
This is why you need an ILADS trained doctor. You can go to their website and download Dr. Burrascano's treatment guideline. It is the "bible" of lyme.
Not saying you have lyme...but any time I see "lesions" on white matter, I always think lyme.
Check out the documentary Under Our Skin (google it). There are also clips on youtube. You can probably rent from your local library.
You can get well! lymenet is a good resource also.
Lyme Disease Symptoms List
1. Unexplained fevers, sweats, chills, or flushing
2. Unexplained weight change--loss or gain
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5. Swollen glands: list areas____
6. Sore throat
7. Testicular pain/pelvic pain
8. Unexplained menstrual irregularity
9. Unexplained milk production: breast pain
10.Irritable bladder or bladder dysfunction
11.Sexual dysfunction or loss of libido
13.Change in bowel function-constipation, diarrhea
14.Chest pain or rib soreness
15.Shortness of breath, cough
16.Heart palpitations, pulse skips, heart block
17.Any history of a heart murmur or valve prolapse?
18.Joint pain or swelling: list joints_____________
19.Stiffness of the joints, neck, or back
20.Muscle pain or cramps
21.Twitching of the face or other muscles
23.Neck creeks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains
25.Facial paralysis (Bell's Palsy)
26.Eyes/Vision: double, blurry, increased floaters, light sensitivity
27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
28.lncreased motion sickness, vertigo, poor balance
31.Confusion, difficulty in thinking
32.Diffculty with concentration, reading
33.Forgetfuiness, poor short term memory
34.Disorientation: getting lost, going to wrong places
35.Difficulty with speech or writing
36.Mood swings, irritability, depression
37.Disturbed sleep-too much, too little, early awakening
38.Exaggerated symptoms or worse hangover from alcohol
Symptoms for Bartonella and Babesia (common co-infections with lyme)
Common symptoms of bartonellosis include:
___Fatigue (often with agitation, unlike Lyme disease, which is more exhaustion)
___Low grade fevers, especially morning and/or late afternoon, often associated with feelings of "coming down with the flu or a virus"
___Sweats, often morning or late afternoon (sometimes at night) - often described as "thick" or "sticky" in nature
___Headaches, especially frontal (often confused with sinus) or on top of head
___Eye symptoms including episodes of blurred vision, red eyes, dry eyes
___Ringing in the ears (tinnitus) and sometimes hearing problems (decreased or even increased sensitivity - so-called hyperacusis)
___Sore throats (recurring)
___Swollen glands, especially neck and under arms
___Anxiety and worry attacks; others perceive as "very anxious"
___Episodes of confusion and disorientation that are usually transient (and very scary); often can be seizure-like in nature
___Joint pain and stiffness (often both Left and Right sides as opposed to Lyme which is often on one side only with pain and stiffness that changes locations)
___Muscle pains especially the calves; may be twitching and cramping also
___Foot pain, more in the morning involving the heels or soles of the feet (sometimes misdiagnosed as plantar fasciitis)
___Nerve irritation symptoms which can be described as burning, vibrating, numb, shooting, etc.
___Tremors and/or muscle twitching
___Heart palpitations and strange chest pains
___Episodes of breathlessness
___Strange rashes recurring on the body often, red stretch marks, and peculiar tender lumps and nodules along the sides of the legs or arms, spider veins
___Gastrointestinal symptoms, abdominal pain and acid reflux
___Shin bone pain and tenderness
Bartonella is a bacterium that causes illness, the most commonly known of which is a disease called "Cat Scratch Fever."
Thousands of known cases of Bartonella occur in the U.S. each Year, with the vast majority of known cases due to bites from fleas that infest cats or infected dogs (may also occur directly from bites and scratches from infected dogs or cats).
Bartonella can also be transmitted by ticks that transmit Lyme Disease.
In fact, in a study published recently, deer ticks from New Jersey had a higher prevalence of Bartonella organisms than of Lyme organisms.
It is unclear whether the organism that we see transmitted along with Lyme disease is actually a Bartonella species (such as B. henselae or B. quintana) or is "Bartonella-Like Organism" (BLO) that is yet to be fully identified.
While BLO has features similar to organisms in the Bartonella family, it also has features slimiar to the Mycoplasma and the Francisella (causes tularemia) families.
As with other co-infections, there is a lot of overlap of symptoms between Lyme disease and Babesiosis. An accumulation of the following signs and symptoms probably warrant testing and/or treatment of Babesiosis:
___Fatigue and often excessive sleepiness
___High fever at onset of illness
___Night sweats that are often drenching and profuse
___Severe muscle pains, especially the large muscles of the legs (quads, buttocks, etc.)
___Neurological symptoms often described as "dizzy, tipsy, and spaciness," similar to a sensation of "floating" or "walking off the top of a mountain onto a cloud"
___Episodes of breathlessness, "air hunger", and/or cough
___Decreased appetite and/or nausea
___Spleen and/or liver enlargement
___Abnormal labs (low white blood count, low platelet counts, mild elevation of liver enzymes, and elevated sed rate)
___Headaches (migraine-like, persistent, and especially involving the back of the head and upper neck areas)
___Joint pain (more common with Lyme and Bartonella)
___anxiety/panic (more common with Bartonella)
___Lymph gland swelling (more common with Bartonella and Lyme)
Many thanks for the advice, currently waiting on the doctor to let me know if I can be tested they seem stupmed have no idea whats wrong. I have also ask for a second opinion for the ICP because i am almost sure its that.
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