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Body Jerks, But Awake

My wife has (from what I've researched) hypnic jerks while falling asleep and while sleeping. We've been told this is normal. What isn't normal (in our opinion) is that she has these when she is awake. She might be reading, walking, writing, talking, or pretty much any activity. Some days she'll have quite of few of them and other days she won't. But she does seem to have more when she is tired or stressed. She's had an MRI and an EEG but the doctors told us they didn't see enything abnormal. I think they gave her Clenazopam (only if I remember right) but after awhile it stopped working. Has anyone else experienced this?
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12901154 tn?1427718462
Please ask your doctor to check you & send you to be checked for Fibromyalgia... It took me 10 long years to diagnosis as no one seemed to think  anything was wrong with me... It was apparently obvious from my continued build up different symptoms where my condition was heading. Yet! everyone missed all the signs, which all began with these symptoms your are mentioning. Worth looking into, & if they don't catch it the first or 100th time.. never give up on trying to fins out.. after all only we know when things change. Don't just accept, an antibiotic & an you will be fine type of diagnosis as all that will lead you to is Depression & feeling like your going crazy or its all in your head.. Good Luck, & hope you get some relief soon... Just an answer make all the difference, especially where it becomes a worry to you.. :) Hope this helped even in a small way.
Helpful - 1
Avatar universal
Hello. I am 28. I did have this kind of jerking for approximately 4 years. My sister and I were watching football match on television. I was concentrating on the game. Suddenly, something happened to me. I just felt an invisible thing entered my body! I was really frightened because nothing like so happened to me before. I felt I am dying now. I can not even think about this time! I was seeing nightmare most of the nights. To be honest, I felt ashamed to tell anyone that I have this issue because I was too worry they don't believe me or consider me as a person have mental illness, and it was so.
Anyhow, I did visit many doctors 'psychiatrist, abdominal doctor, neurologist', but I it wasn't successful.
I had no hope to anything but having faith to God. Then I said 'maybe I have spiritual diseases'.
One day someone advised me to listen or read surah al-Baqara which is the second chapter of the Quran...
I started to read it twice a day after 40 to 50 days I really felt a huge difference! in addition I was trying to overcome this habit I had. Thanks God I feel very well today. If you have still it please don't hesitate to try this treatment. Hope everyone who has this problem get well very soon. Respect.
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Avatar universal
I am glad to hear that other people are experiencing this same thing. Currently i am on the run up to my GCSE exams and I am under a lot of stress. I tend to experience these weird jerks in my body when in things such as assembly when i know I am meant to sit still. I try my best to stop my body from doing this but I can not. I sit with my friends and I wonder if they are noticing this too or it is all in my head. I honestly do not know what is going on with my body, if anyone has any answers as to what this could be please let me know.
Helpful - 0
Avatar universal
I get them only in my hands throughout the day. They appeared when I was 29 during a stressful phase when I was unemployed for a long time. Started as a hand pain similar to arthritis, now just periodic jerks. I'm healthy and take no medications. PMP seems to shrug it off and only does blood tests. I wonder if this is a new normal for me or will I have a seizure one day or something.
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Avatar universal
sarah scalia, des872, winkinblinkinnod, sine, &al-

hypnagogic jerks/ myoclonus induced by SSRI's: it's a real thing.  

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4481805/

i'm a psychiatrist, and i HATE it when docs tell you it's all in your head without even doing a 10 second literature search.  
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Avatar universal
Yes absolutely, and I am so greatful u posted ur concerns. I have been seeking for answers for the last 3 months. Even general practitioners or nurses seem to know the problem.

Any way, like ur wife I tend to experience frequent muscle spasms or jerks. Lately the movements (Jerks) are significantly greater then a twitch. I tend to experience these movements while I'm laying down in bed, either awake or about to fall asleep; and like ur wife, while under a lot of stress.

There is a part of me that believes there is an element of spiritualism involved, in conjunction to neurological or something. However. I hope u discovered some answers, it would be nice to find out what's going with my body. Thanks
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Avatar universal
Hi everyone. I have been taking clomipramine for two years now and I developed twitching and jerking throughout my whole body after increasing on to it. It appears to be most severe during sleep where i thrash about with huge jerking movement's and have freaked my household out (they thought I was having seizures). I have also torn a ligament in my leg and it won't heal because every night my leg is kicking - I remember yelling in pain but I'm unable to wake up during it. My psychiatrist and GP say its not the medication but rather anxiety - I've been anxious my whole life, I'm sure it is to do with the medication. Thanks for reading my story. Sine
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2117800 tn?1398390314
Neuro11 - I live in FL and have been having these myoclonic jerks for a few years now. I am 38 years old. They went away for a little while after I had surgery for my Chiari Malformation, but theyre back. Ive been on Zoloft since I was 16, and IVe noticed that they get worse with higher dosages. IVe had numerous EEGs and MRIs that have shown some epileptic activity. Do you know of any correlation between myoclonus and Zoloft? I have a neurologist but hes dismissed my theory on this. However IVe tested this theory on myself after first noticing it and it's definitly something in the Zoloft causing it. Any direction you can point me in to find more information on this? IVe done research online but havent found much. Thank you!
Helpful - 0
2 Comments
SarahScalia,Crazy you say that because I just started having these myoclonic jerks and have been doing some research all day and found this and I take Zoloft too. So I definitely think there is a correlation between the two..
Hi, I'm a 54 year old woman and I've had this cor a few months. So sorry to hear you suffer with this also yet relieved to know I'm not crazy. I think you hit the nail on the head. I take A weight loss med,Contrave.has buproprion and naltrexone.it can cause seizures.i do not want to stop it cause I've lost 78 lbs.Seizures also run in the family but from youth. When I get that jerk and my eyes roll back it feel like I'm leaving for a sec. I've done it standing.once it made my hand fly out and
hit the counter.each time I think if it does keep going on longer than a second  that I WILL fall.I had just gone to over night shift at hospital and sleep was messed up and thought I was just tired and was falling asleep until just now when I found this post.wow.
Avatar universal
I am 22 years old and I guess I have the same problem. When I woke up in the morning sometimes sudden Jerks while I am brushing or while in washroom. Sometimes I fell down and get hurt. Recently while Exercising I felt down and got my Chin Injured and nearly broke my jaw.
I don't know how this is happening but a Medicine named Divaa-500 is really effective. I think you should try it.
Helpful - 0
2 Comments
Hi, I just came a crossed your post. I work in the neurology field and your post got my attention. How long has this been happening to you and have you ever had a seizure? If this has been happening since you were younger,It sounds like you may be experiencing a condition called juvenile myoclonic epilepsy or JME. Along with your age and what you described is the hallmark symtoms of this condition. I strongly suggest you find a neurologist (Epileptologist) that specializes in seizure disorders. You will need a test called an EEG for proper diagnosis. This condition is treatable with specific medications but first you need to be diagnosed and other conditions need to be ruled out. If you live in Florida I can give you some contacts of doctors that may be able to help you. Good luck and sorry to hear that you are going though this.
The message below is for you. I accidentally didn't reply to you directly. Thank you!
Avatar universal
Lyme disease for years I was told was everything under the sun but had a test through Isagenix and it was positive. I jerk primarily on my left side. Watch the movie "Under the Skin" it will teach you what she may have. All the best'n
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Avatar universal
hi my name is Christina, I have some what the same symtoms you did, im glad to hear your better. I notice that with me if I don't get a good night rest my body will twitch the next day without me having any control of it. it started ten years ago I just had my daughter and went out with my husband for drinks I did have quite a bit to drink nothing bad should've just had a normal hang over, any way the next day my body felt really stressed and tired and I started twitching so strong my husband though I was having seizures, I went to neurologist everything came back normal. but I still till this day suffer from it. I looked up the magnesium website you listed and im going to give it a try. Is there anything else you can recommend to me? Im so desperate and tired of living like this, im now a single mother of 3, and they need me. Please Help.
Helpful - 0
Avatar universal
Yes,My knees gave way with out any warning.   I was on the floor for an hour.   I call a friend and was put in an office chair I used.    When I trying to walk again my knees kept giving away as my arms.  This jerking and I was still on the floor.  I got  help and was again place in a office chair then in my chair in the living room.    I didn't know what to do or what was happen to me.  I did took a nap and I was able to get to my bed.  I use chairs and did very little walking.  The next morning I was walking fine.

Well this happen a second time a few days ago.  Out of the blue with out any pain.  This friend was able to put me in my chair.    I didn't have to rest  nearly as long.    I still don't know what is going on and will it start happening again?  Any advice?
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Avatar universal
Hi there my name is Cindy and I just turned 30years old i wasnt born with it but i got my jerks from stress and depression, my jerks is such an insault for me because i cant control it and people still laugh at me when i get the jerks. sometimes my jerks is so powerfull it pushes me back with a huge impact as if someone push me to fall backwards.sometimes it happens as if someone pushes me to fall faward into something.with my jerks in the 20years now i have fallen my head open 8times on the same spot everytime, almost broken both my anckles this past december 2014 brused my head and body alot,to be honest my sickness took my briteness and model future away i could never except this myoclonic epilepsy sickness of mine i also lied about my sickness to my friends in school otherwise i would never had any friends at all.my biggest wish ever was to be normal without this sickness and to have my licence and own car and great work and today i must live with a babysitter  on my side...people i cry so much i hate it
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Avatar universal
this is happening to me as well im 15 and even if its the slightests noise in jerk real fast and while im dozeing off
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Avatar universal
sounds like lyme
Helpful - 0
Avatar universal
Same here with me!  I am now taking more Parkinson's medicine than most severe Parkinson's patients.  If I don't, instead of twitches that lead to tremors, that then lead to jerking all over my body. After that, I begin to violently jerk so hard that by body literally would knock my husband out of the bed while he was alive.  I have also began falling backward to the degree that I have injured my spine and must now have major back surgery. Like many of  you, the jerking gets much worse when I am very fatigued or go for long periods without sleep, which is very often because I have horrible insomnia.  I also get where my speech is slurred and then is completely  unintelligible. I did have a massive stroke in my sleep in 1996, at 48.  I am military officer's widow and I live alone with my three dogs. Sometimes I have been injured by the falls and jerking body that I have been taken to the emergency room, where, of course, they knock me out with heavy drugs/  Is there anyone who has similar problems and has gotten a read diagnosis?  I will be soooo grateful for any help  you can give me.  This is destroying my l ife!
Helpful - 0
Avatar universal
im seeing the same symptoms you speak of in myself and just about everyone around me and its scaring the hell out of me. seriously now 9/10 people i know now have this. and the sad part is no one ever used to have it but in the past 2-3 years everyone now has it and the conditions are becoming worse within all of then. i dont know what else to expect other than the food we eat amd chemicals all around us. i mean who knows whats even in our food with all the hormones, GMOs, pesticides, and MSGs... this is something that seems to be if you dont have it now it will effect you soon enough. ive watched family,friend,and stranger unvolintarily move limbs... limb after limb and with my symptoms il be the next to move limbs...  daily i have small muscle twitches and are progressively getting worse as days go on and recently have had a few involuntary limb movements but since with the occurance is hard to deter from natural flinch or this sickness... its hard watching the people i care for slowly decline and im next in line... this sickness has a bit more to it than face value... and btw no doctor will cure you. pray to god for an answer
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Avatar universal
My 3 year old son is having the same symptoms that most of you are referring to. It is non stop from the time that he wakes up in the Mornings, and stops only after he falls into his sleep. We are currently at Scottish Rite in Ga. He is going throught the Process of ruling out this and that. I'm being told that it is a Movement Disorder.  They have started him on a medication tonight. What have you Learned, and can you give me advice?
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Avatar universal
i get it too.
not a lot but when i do its so scary, today i was sitting looking at my computer then all of a sudden felt like my brain fell out for a split second then recover, i also have depression an server anxiety disorder.. maybe has somthing to do with that, but really gets me scared when it happens.
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Avatar universal
i get it too.
not a lot but when i do its so scary, today i was sitting looking at my computer then all of a sudden felt like my brain fell out for a split second then recover, i also have depression an server anxiety disorder.. maybe has somthing to do with that, but really gets me scared when it happens.
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Avatar universal
http://www.ninds.nih.gov/disorders/myoclonus/detail_myoclonus.htm try this link i found that it helped me understand
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Avatar universal
I am 47. When I get over tired from work ( I stand for usually 7 to 9 hrs) or from long days of activities, I often start twitching or jerking after I sit or lay down and start to relax.  The twitch is usually full body, not just arms or legs; sometimes I jerk into an almost fetal position.  They range from mild to very strong.  They do not cause pain but make me uncomfortable.

Is this a condition I should be concerned enough about to contact my PCP?
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Avatar universal
Those spots are called trigger points. Press lightly for 90 seconds, release again after several minutes should soreness remain.
I have had multiple spinal surgeries and nerve injuries, resulting in more and more of these trigger points throughout the body.
Have found trigger point release and yoga stretch with deep paradoxical breathing including manual release to be best.
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Avatar universal
What are you thanking him for? He forgot to put Lyme disease or like the other person said parasites.. Which is most likely the answer.
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