Burning Pain

The symptoms started in 1998. I got a slight burning sensation in my feet. I thought it was some kind of fungus. I tried everything for fungus and other infections, but nothing happened. The burning sensation in my feet came and went for a couple of years. I also started feeling pain in my legs, especially when I walked or I was standing for longer than normal periods. This pain has been increasing through the years. I started noticing pain in my feet as well as in my legs. About three years ago I started feeling burning sensations in my legs. At the beginning they were mild and in the lower part of my legs. Gradually the burning sensation became mostly localized in the back part of my lower leg. The sensation is more intense in the left leg than it is in the right. For about two years, the pain has been unbearable. My legs burn and are in serious pain. I feel like somebody beet my feet and my legs up with a baseball bat and then set them on fire. The burning sensation never goes away, but I noticed that is even worse during the summer.

To make matters worse I have been suffering from restless leg for over one year now. It gets VERY annoying. I have also become very sensitive to touch. It is hard to explain but specially at night just the thought of touching my legs makes me uncomfortable. All this sensations have interfered with my sleep, and sometimes I go days without sleeping. I have seen many specialists, neurologists, psychiatrists, etc. They have run several tests such as nerve conduction, x-rays, MRIs, Blood, Urine, and everything always comes back ¨normal.¨ Since I don’t have any visible symptoms, my neurologist thinks it might be a peripheral neuropathy, and that I have to live with it. Throughout the years the doctors have prescribed me different medicines. I currently take 0.5 mg of Klonopin, 10 mg of Paxil, and 0.5 mg of Requip. They have tried increasing the doses, but there has been not improvement and the side effects have been horrible.

This condition / conditions are ruining my life. I am only 40 years old. I have four kids (2 on my own and 2 step kids) I have a wonderful, beautiful wife that I love with all my heart. I used to be full of life and really enjoyed life as a whole. Every day is harder. My mood has changed and it is affecting my job and family. I feel I am getting worse. I am afraid that the burning sensation is taking other parts of my body. Sometimes I feel it in my hands and arms. I don’t see a solution to these problems. I would be more than happy knowing that the pain will not get worse. I don’t see a future with this suffering. I need HELP!! If somebody has an idea of what I have, I will fully appreciate your comments / suggestions.

[kathieH]

Read about Fabry Disease and see if any other symptoms sound familar. 5 people in my family have it.

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