I was Dx. with CIDP about 2 1/2 years ago. I have numbness, tingling, burning and cramps in my legs, feet, arms and hands. I have been in a wheelchair for 2 years because of weekness. I am on 50mg of IVIg every 10 days. I find myself fighting with the insurance company to get the treatments because of the costs. Is there anything else I can do. The treatments do make me stronger and I can walk a little after I have an infusion. However I am not getting better. As soon as the insurance company stops the IVIg I get worse again.
This discussion is related to Guillain Barre or not?.