CIDP and chemotherapy

[funkimi]

I have been diagnosed with CIDP, and have gone through the "normal" protocol.. prednisone, IvIG, plasmapheresis, with no real help.  My neurologist now suggests therapy with cytoxan or cellcept.  He is "saving" the stem cell/bone marrow transplant as a last resort.  I have read all of the info on both drugs and the risk/benefit for each.  Because this disease robbed me of my life, I am leaning towards cytoxan therapy because it seems to be more aggressive than the cellcept (which is used mainly for transplant rejection).  I really don't care about the side effects IF THE END RESULT IS GETTING MY LIFE BACK.
My question, therefore, is this:  do most neurologists use cytoxan as a last resort for CIDP patients?  Have the results been beneficial to the patient (remission of the disease process)?  Would you, (a neurologist) recommend the use of cytoxan for a patient that has laboratory/emg results that prove the diagnosis of CIDP and has had no real benefit from the "regular" treatments?                                                                                                                                                                                                                                                                                                                        

[cid421]

I have the same issue, and not a month ago was diagnosed with frontal lobe epilepsy. Did you have the treatment was it successful, I am only 31 and have 1 1/2 year old. Feels like its robbing him of his life too.  Thanks!
Cid

[funkimi]

thanks so much for your support.  appreciate that nobody thought it might even help lift my spirits to acknowledge the question, even if you didn't have an answer.  So, this site turns out to be a clique, not helpful even at the most basic level.  I will make certain to let the staff at the hospital know that they should not recommend this website.