I am a 57 year old female who has been diagnosed with CNS inflammation. After reading a posting from this forum, Heidi - 1-24-1999, the response stated that a patient should not be left with a diagnosis of CNS inflammation; however, that is how I have been left as 2-6-08. On 11-11-07, I had a seizure while at a pro football game and was taken to HUMC where I was admitted for 11 days. During that time I underwent a multitude of tests to include CAT scans, MRIs, blood work, EKGs, lumbar puncture and was told that I have inflammation of the meninges and lesions on the brain. I was discharged from the medical center on 11-22-07 with Rx's for Keppra and Dialantin (3000 mg and 500 mg respectively). Initially, the neurologist and the neurosurgeon (who performed the brain biopsy) both thought I had vasculitis. Following my recovery from surgery, an angiogram was done on 12-17-07. The result did not confirm vasculitis. I had another MRI on 01-03-08 which showed no change from previous MRI on 11-20-07. On 02-05-08, while being weaned off of the Dialantin, the left side of my body went completely numb, and after discussing w/my neurologist, he suggested I go to the local hospital. Another round of testing was performed to include another MRI, which was compared with the previous MRIs and determined to exhibit no change. As of today, I've been told nothing other than that I have CNS inflammation and that I am a "unique presentation." It should be noted that the HUMC neuropathologist forwarded the biopsy samples to the Mayo Clinic for a second opinion. I'm told that I have abnormal cells in the spinal fluid and arachnoid; however, cancer has been ruled out. With the above background information and the fact that the only thing I've been told as far as a diagnosis is "CNS Inflammation", where do I go from here?
We DID get a report from the Mayo Clinic's Neuropathologist. Basically, it mirrored the HUMC Neuropathologist's report, which confirmed abnormal cells; however, no definite diagnosis. There was no fever following the seizure or during the 11 days in the hospital, or since. Also, I have been tested twice (once in Nov 07 and once in Feb 08) and both were negative. I have been told that there is no tumor and no cancer!!! My concern is that, my diagnosis seems to have been left at "CNS Inflammation", which according to a Dr's response I read on another post said "A diagnosis of CNS Inflammation is NOT appropriate."
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.