CPK Levels 135,000 plus

[CSterling]

I recently returned home after 9 days in the hospital.  I was admitted after extreme pain throughout my muscles, and discolored urine led my dr to send me to the ER for tests.  Those tests showed that my CPK levels exceeded 135,000 and i was diagnosed with Rhabdomyolysis.  All other tests did not reveal the cause of the Rhabdomyolysis but no-one at the hospital seemed to have ever heard of cpk levels this high.  My searches on the internet have also not revealed any levels nearing this.  I am now down to 4000 (and hopefully dropping).  

any thoughts?

have there been other cases with cpk levels exceeding 135,000 and what was the cause?

[anglloyd]

Hello all. I am a fairly fit 37 yr old female.  On June 7, I was injured while halfway through a cycling class.  I actually collapsed into the bike because my quads gave out.  3 days later I was admitted to the hospital after seeing my primary.  My levels weren't as high, mine by the day I went into see the doctor was only 33,000.  By that Saturday it was down to 13,000 and they released me.  My potassium was very low when I went in, then my calcium.  Now I am vitamin d deficiant.  I also am having muscle tremors, spasms, speech problems, concentration problems, pain, weakness.  I can only stand and walk for an hour or two a day before I am exhausted and my body really reacting.  I am being refered to University of Washington Neuromuscular Disorder dept.  The doctors are all wondering why this is happening.  It is extremely scary.

[luisver]

I am 40 years old and somewhat in good shape having run a marathon in 2008 and 2009.  I went water skiing (one ski) on Sunday nine days ago, something I had not done in 20 years.  After trying for the tenth time I was able to stand-up, however, the nine previous tries were very hard as I was pulled inside the water for some time each try (I attributed the difficulty to the boat's lack of power).  That night I could not even turn around in bed and the next day I could barely put my socks on (took me 15 minutes); walking or going up the stairs was very hard, and literally my entire body ached.  Monday night was again terrible and on Tuesday around noon I noticed my urine was brown.  I waited until Wednesday morning and after checking that the urine was still brown I went to see a doctor.  He immediately  told me I had Rhabdomyolysis and ordered blood work.  The results showed CPK level of 246,983 and mioblobin of 7,171.  My doctor was surprised and told me I could have had kidney failure.  By Thursday my urine was almost normal, although I was in a lot of pain until the following Monday.  It is now Tuesday and I feel almost no pain.  

I did some internet research and found a study that indicates that exercise induced Rhabdomyolysis in a number of reported cases was not responsible or did not cause kidney - renal failure. See http://www.charlydmiller.com/LIB04/1994exerciserhabdo.html

[rboncy]

I'm a 26 year old male with no pre-existing conditions and I had a tonic-clonic seizure a few months ago due to a rapid drop in my sodium due to water intoxication.  A day or two after the seizure my CPK levels were at 130,000.  I was in the hospital for a week, and my mind (memory) and body was a mess for a few weeks after.  The last time I got my CPK levels checked was also a few months ago and it had gone down to 1,500.  I should probably get that checked on again.  My doctor, who was a kidney specialist, also had never heard about these levels being this high, which is now a little puzzling to me seeing as it only took a search from google to discover at least a couple of people with the same issue.  Anyways, I've wondered since then if elevated CPK levels are something that help the body to recover, or if it is something that only has negative effects.  My hope is that these super high levels mean that those of us in this small group have God-like abilities... though that might be a bit of a stretch.  Has anyone who has had these high levels had further health problems in life that they attribute to it?  Or perhaps, and hopefully, they lived to be well over 100 and could fly.

[Dugan240]

heyy sterling im 16 years old and i went through a thinig called jumpstrectch for baseball conditioning and i was diasgosed with the same thing ( rhabdomiolisis ) and my CPK got up to 152,235 the doctors dont no how i survived or anythigni live in struthers ohio ( youngstown ) and i had to go to 3 different hospitals starting and ST.E's and then moved to akrons childrens sub campus in youngstown and then had to go to akron ohio to the main akrons childrens hospital i was on the verge of getting a muscle bioppsy but then after a week thelevels have decreased. i was emited in the hospital for 6 days. it was horrible. i feel ur pain i could not even walk