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CPK Levels 135,000 plus

by CSterling, Nov 21, 2008 08:17PM
Tags: cpk
I recently returned home after 9 days in the hospital.  I was admitted after extreme pain throughout my muscles, and discolored urine led my dr to send me to the ER for tests.  Those tests showed that my CPK levels exceeded 135,000 and i was diagnosed with Rhabdomyolysis.  All other tests did not reveal the cause of the Rhabdomyolysis but no-one at the hospital seemed to have ever heard of cpk levels this high.  My searches on the internet have also not revealed any levels nearing this.  I am now down to 4000 (and hopefully dropping).  

any thoughts?

have there been other cases with cpk levels exceeding 135,000 and what was the cause?
Member Comments (2)

by Dugan240, Apr 01, 2009 04:37PM
To: CSterling
heyy sterling im 16 years old and i went through a thinig called jumpstrectch for baseball conditioning and i was diasgosed with the same thing ( rhabdomiolisis ) and my CPK got up to 152,235 the doctors dont no how i survived or anythigni live in struthers ohio ( youngstown ) and i had to go to 3 different hospitals starting and ST.E's and then moved to akrons childrens sub campus in youngstown and then had to go to akron ohio to the main akrons childrens hospital i was on the verge of getting a muscle bioppsy but then after a week thelevels have decreased. i was emited in the hospital for 6 days. it was horrible. i feel ur pain i could not even walk

by rboncy, Nov 04, 2009 06:00PM
I'm a 26 year old male with no pre-existing conditions and I had a tonic-clonic seizure a few months ago due to a rapid drop in my sodium due to water intoxication.  A day or two after the seizure my CPK levels were at 130,000.  I was in the hospital for a week, and my mind (memory) and body was a mess for a few weeks after.  The last time I got my CPK levels checked was also a few months ago and it had gone down to 1,500.  I should probably get that checked on again.  My doctor, who was a kidney specialist, also had never heard about these levels being this high, which is now a little puzzling to me seeing as it only took a search from google to discover at least a couple of people with the same issue.  Anyways, I've wondered since then if elevated CPK levels are something that help the body to recover, or if it is something that only has negative effects.  My hope is that these super high levels mean that those of us in this small group have God-like abilities... though that might be a bit of a stretch.  Has anyone who has had these high levels had further health problems in life that they attribute to it?  Or perhaps, and hopefully, they lived to be well over 100 and could fly.
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