And visits an ear doc too of coarse..
Hi!
Sorry to hear your problems.
Your symptoms don't make sense to me. Headache when standing up can be a spinal csf leak. Tinnitus as well. But csf leaking out from your nose points to a cranial csf leak which does not cause any headache. Unless the leak is caused by too high intracranial pressure because too high pressure cause headache, typically headache that is worse in the morning and worse when lying down, and can in rare cases also cause cranial csf leak.
The numbness sounds more like a tia or a blood vessel malformation or maybe a small subdural bleeding (less likely).
So your symptoms are not consistent, they point in all directions.
Have you checked the liquid coming out of your nose that it really is csf?
Have you had a brain mri or ct scan?
Have you met a neurologist?
Here is what i would recommend:
Do a csf test of the liquid from your nose.
Do a brain mri, preferably with gadolinium contrast to check for signs of too low pressure. Then you will also know if you had a bleeding, infarct or tumor etc.
Do a MRA to check for blood vessel malformations in the brain and cervical spine.
Do a mri of the spine.
Check blood pressure in both arms, they should have the same pressure.
But most important, do some kind of brain scan first to check for too high pressure, or go to an eye doctor, they can also check for this by looking for edema in the eye bottoms.
Also try some headache preventive drug like propranolol or amitriptyline. Ask your doc.
I got to tell you, since your symptoms point in all kinds of direction it really smells like migraine to me. Migraine has the ability of disguising as all other headache diseases. However, in your case migraine must be a diagnosis of exclusion. So I recommend that you have the testing. But also start with the migraine preventive drugs to see if it gets better.
You must see a good doctor about this.
Good luck!