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Can This Be Caused By Spinal Tap?
by sherivery, Jul 09, 2007 10:21PM
Various symptoms below. I have been through 5 Neurologists and no one can tell me what's wrong. Here is my medical history.
AUGUST 2005 – INJURY:
Tore nerves in left back of knee area while running. Since then, a series of symptoms and complications has developed.
2006 - MAY
- Bad Pain in top part of left big toe develops suddenly overnight; 2 wks later cannot move it; pain is severe when moved upwards – sends pain up left calf (back of knee area). As of January 2007, toe in same condition.
- Left foot weakness develops.
- Sharp shooting pains start up injured area (back of left leg: very top of calf/knee area).
- NO MRI of this area provided for toe area to present date.
2006 - JUNE
- (MRI) of left leg calf given: Tested positive for Edema. Edema remains for a period of 5 straight months - left untreated.
- Terrible Pain develops in back of left leg: very top of calf/knee area (electrical pains shooting when walking). Always stops me in my tracks when walking and cannot move for at least 5 mins because of pain.
- Bad Headaches develop; migraine-like average maybe 2 days out of the month.
2006 - AUGUST
- Edema still a big problem in left calf; foot swollen after 10 mins of standing due to edema.
- Frequent urination; urine begins to turn a lime color green and lasts for about 1 week.
- Right thigh becomes numb, burning sensations, tingling. Burning lasts for about 3 weeks off & on but mostly at night when laying down. Crawling sensations and tingling added.
- Bad headaches subside. Not as bad.
- Terrible Pain continues in back of left leg: very top of calf/knee area
(Electrical pains shooting when walking).
2006 - SEPTEMBER
- Edema still a problem in left calf; foot swollen after 10 mins of standing due to edema.
- Left eye starts to become painful in back of eyeball; “very slight” occasional blurriness develops.
- More dizziness from time-to-time
- Lose balance “occasionally” – not much.
- Pain subsides in back of left leg: (very top of calf/knee area) suddenly
- MRI (Brain) proved positive for small white matters (7)
- SPINAL TAP conducted. Develop chronic neck pain (back of neck) 1 week later.
- Lightheadedness and pressure builds in head when standing or sitting often – making me feel as if I am going to pass out. As of January 2007, in same condition. This generally lasts for about 30 mins.
- EPIDURAL BLOOD PATCH conducted 8 days after Spinal Tap. Neck condition worsens.
- Very bad headaches frequently 2x-3x per week. Headaches mostly occurred in the back of left eye and back of head and seem to happen often since Spinal Tap.
2006 - OCTOBER (LAST WEEK OF MONTH)
- Numbness in right leg resolves a lot
- Edema in left calf resolves a lot
- Pain in left eye resolves a lot
- Headaches resolve a lot but come & go occasionally (less severe)
- Lightheadedness and pressure builds in head when standing or sitting often – making me feel as if I am going to pass out. This generally lasts for about 30 mins to2 hours.
- Lose balance “occasionally” – not much.
2006 – NOVEMBER
- Used hair dye; two weeks later, severe burning started at very top of head. Not sure if this was a pre-existing medical condition or something caused by use of dye. Head pains started before use of hair dye… but burning started after use of Neurontin which was taken two weeks after using hair dye.
- Neurologist prescribes “NEURONTIN” twice daily 100mg for head pains.
- TERRIBLE PAIN INSIDE HEAD – (pain similar as if someone hit me with a hammer at the very TOP of head). Does not feel like the “normal headache” but more like a bruising type of pain.
This pain started since taking Neurontin – mostly appearing at very top of head and behind left eye. Headaches begin 2nd week of November and continually increases daily becoming worse.
- Burning pain begins at very top of head. This happens sporadically.
- Forehead becomes numb on (11/30/06). This happened twice in a two-week period. Lasted maybe an hour.
- Terrible (more like pressure-like) pain running up back of neck to my head.
- Frequent urination from time-to-time
- Lightheadedness and pressure builds in head become worse when standing or sitting often – making me feel as if I am going to pass out. This generally lasts for about 30 mins to 2 hours and happens mostly in morning.
- Lose balance “occasionally” – not too much.
2006 – DECEMBER
- 12/03 Left hand becomes weak for about 8 mins. Hard to lift a pen.
- Pain in head become a lot more severe and is now daily since November – mostly starting from left temple/eye area to top of head. Can no longer lie on the back of my head or left side of head; hard to wash hair or scratch head due to intense pain; it brings on severe shooting pains in head – mostly top. Sharp shooting pains on left side of head (temple/eye area) happen sporadically.
- Burning pain continues at very top of head. This happens sporadically.
- Burning pain on (12/28/06) top of head but closer to forehead now
- Lightheadedness and pressure continues to build in head when standing or sitting often – making me feel as if I am going to pass out. This generally lasts for about 30 mins.
- Frequent urination (once in awhile).
- Chronic neck pain gets worse. Sometimes hard to turn neck because of pain.
- EMG TEST conducted 12/13/06 (High Point Neurological Center): There was no response from the Lateral Femoral Cutaneous nerves on either side of leg.
- LEFT TOE PAIN REAPPEARS since it first began in May 2006 where symptoms first started.
- Left Calf pain reappears since it first began in JUNE 2006
- Lower back pain near spinal tap area on 12/28/06
- Lose balance “occasionally”
- Severe head pain and burning still the same
- Chronic neck pain still the same
- Lower back pain still the same
- Left toe pain still the same since December
- Left calf pain still the same since December
- NEW Bad needle pinching feeling near mid to lower spine area. This started on 1/15/07
Resolves This Month:
Forehead numbness, frequent urination, loss of balance – goes away month of Jan. Everything else still the same.
IMPORTANT NOTE:
Most head pain happens everyday between 6pm-10pm. Pain is sometimes brought on by sitting or lying down.
2007 – MARCH/APRIL
- Severe head pain and burning still the same
- Chronic neck pain begin to dissolves
- Lower back pain dissolves
- Left toe pain still the same since December
- Left calf pain dissolves
- NEW: Small lump on very TOP of head appears and is very painful when touched; causing itching.
2007- APRIL - MAY
- Sharp shooting pains run from left temple to back of head when laying head on a pillow – mostly when lying on the left side or back of head.
- Severe head pain and burning still the same
- Rheumatologist says there are deep erosions in left foot (joints)
- Pain near left temple gets worse; left eyeball pain sporadically
2007- JUNE
- Missed menstrual cycle month of June
- Took pregnancy test: came out negative
2007- JULY
- Left calf pain reappears
- Severe head pain and burning still the same
- NEW: Burning begin slightly now in back of neck
- NEW: Feelings of nausea sporadically
AUGUST 2005 – INJURY:
Tore nerves in left back of knee area while running. Since then, a series of symptoms and complications has developed.
2006 - MAY
- Bad Pain in top part of left big toe develops suddenly overnight; 2 wks later cannot move it; pain is severe when moved upwards – sends pain up left calf (back of knee area). As of January 2007, toe in same condition.
- Left foot weakness develops.
- Sharp shooting pains start up injured area (back of left leg: very top of calf/knee area).
- NO MRI of this area provided for toe area to present date.
2006 - JUNE
- (MRI) of left leg calf given: Tested positive for Edema. Edema remains for a period of 5 straight months - left untreated.
- Terrible Pain develops in back of left leg: very top of calf/knee area (electrical pains shooting when walking). Always stops me in my tracks when walking and cannot move for at least 5 mins because of pain.
- Bad Headaches develop; migraine-like average maybe 2 days out of the month.
2006 - AUGUST
- Edema still a big problem in left calf; foot swollen after 10 mins of standing due to edema.
- Frequent urination; urine begins to turn a lime color green and lasts for about 1 week.
- Right thigh becomes numb, burning sensations, tingling. Burning lasts for about 3 weeks off & on but mostly at night when laying down. Crawling sensations and tingling added.
- Bad headaches subside. Not as bad.
- Terrible Pain continues in back of left leg: very top of calf/knee area
(Electrical pains shooting when walking).
2006 - SEPTEMBER
- Edema still a problem in left calf; foot swollen after 10 mins of standing due to edema.
- Left eye starts to become painful in back of eyeball; “very slight” occasional blurriness develops.
- More dizziness from time-to-time
- Lose balance “occasionally” – not much.
- Pain subsides in back of left leg: (very top of calf/knee area) suddenly
- MRI (Brain) proved positive for small white matters (7)
- SPINAL TAP conducted. Develop chronic neck pain (back of neck) 1 week later.
- Lightheadedness and pressure builds in head when standing or sitting often – making me feel as if I am going to pass out. As of January 2007, in same condition. This generally lasts for about 30 mins.
- EPIDURAL BLOOD PATCH conducted 8 days after Spinal Tap. Neck condition worsens.
- Very bad headaches frequently 2x-3x per week. Headaches mostly occurred in the back of left eye and back of head and seem to happen often since Spinal Tap.
2006 - OCTOBER (LAST WEEK OF MONTH)
- Numbness in right leg resolves a lot
- Edema in left calf resolves a lot
- Pain in left eye resolves a lot
- Headaches resolve a lot but come & go occasionally (less severe)
- Lightheadedness and pressure builds in head when standing or sitting often – making me feel as if I am going to pass out. This generally lasts for about 30 mins to2 hours.
- Lose balance “occasionally” – not much.
2006 – NOVEMBER
- Used hair dye; two weeks later, severe burning started at very top of head. Not sure if this was a pre-existing medical condition or something caused by use of dye. Head pains started before use of hair dye… but burning started after use of Neurontin which was taken two weeks after using hair dye.
- Neurologist prescribes “NEURONTIN” twice daily 100mg for head pains.
- TERRIBLE PAIN INSIDE HEAD – (pain similar as if someone hit me with a hammer at the very TOP of head). Does not feel like the “normal headache” but more like a bruising type of pain.
This pain started since taking Neurontin – mostly appearing at very top of head and behind left eye. Headaches begin 2nd week of November and continually increases daily becoming worse.
- Burning pain begins at very top of head. This happens sporadically.
- Forehead becomes numb on (11/30/06). This happened twice in a two-week period. Lasted maybe an hour.
- Terrible (more like pressure-like) pain running up back of neck to my head.
- Frequent urination from time-to-time
- Lightheadedness and pressure builds in head become worse when standing or sitting often – making me feel as if I am going to pass out. This generally lasts for about 30 mins to 2 hours and happens mostly in morning.
- Lose balance “occasionally” – not too much.
2006 – DECEMBER
- 12/03 Left hand becomes weak for about 8 mins. Hard to lift a pen.
- Pain in head become a lot more severe and is now daily since November – mostly starting from left temple/eye area to top of head. Can no longer lie on the back of my head or left side of head; hard to wash hair or scratch head due to intense pain; it brings on severe shooting pains in head – mostly top. Sharp shooting pains on left side of head (temple/eye area) happen sporadically.
- Burning pain continues at very top of head. This happens sporadically.
- Burning pain on (12/28/06) top of head but closer to forehead now
- Lightheadedness and pressure continues to build in head when standing or sitting often – making me feel as if I am going to pass out. This generally lasts for about 30 mins.
- Frequent urination (once in awhile).
- Chronic neck pain gets worse. Sometimes hard to turn neck because of pain.
- EMG TEST conducted 12/13/06 (High Point Neurological Center): There was no response from the Lateral Femoral Cutaneous nerves on either side of leg.
- LEFT TOE PAIN REAPPEARS since it first began in May 2006 where symptoms first started.
- Left Calf pain reappears since it first began in JUNE 2006
- Lower back pain near spinal tap area on 12/28/06
- Lose balance “occasionally”
- Severe head pain and burning still the same
- Chronic neck pain still the same
- Lower back pain still the same
- Left toe pain still the same since December
- Left calf pain still the same since December
- NEW Bad needle pinching feeling near mid to lower spine area. This started on 1/15/07
Resolves This Month:
Forehead numbness, frequent urination, loss of balance – goes away month of Jan. Everything else still the same.
IMPORTANT NOTE:
Most head pain happens everyday between 6pm-10pm. Pain is sometimes brought on by sitting or lying down.
2007 – MARCH/APRIL
- Severe head pain and burning still the same
- Chronic neck pain begin to dissolves
- Lower back pain dissolves
- Left toe pain still the same since December
- Left calf pain dissolves
- NEW: Small lump on very TOP of head appears and is very painful when touched; causing itching.
2007- APRIL - MAY
- Sharp shooting pains run from left temple to back of head when laying head on a pillow – mostly when lying on the left side or back of head.
- Severe head pain and burning still the same
- Rheumatologist says there are deep erosions in left foot (joints)
- Pain near left temple gets worse; left eyeball pain sporadically
2007- JUNE
- Missed menstrual cycle month of June
- Took pregnancy test: came out negative
2007- JULY
- Left calf pain reappears
- Severe head pain and burning still the same
- NEW: Burning begin slightly now in back of neck
- NEW: Feelings of nausea sporadically
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The affect limbs may actually atrophy with loss of muscle mass.
I have heard of cases in which it spread to include most of the body. I don't know about the head pain you've been experiencing.
Complex Regional Pain Syndrome often requires a team of pain specialists to treat. It can become chronic as it sounds like yours (if that is what you have) is. If you are not already seeing a top-notch Pain Management Team (like at a major University) I would recommend you get in to see one as soon as possible.
You can do a search for it and read quite a bit.
Did my description ring any bells?
Quix