Cavernous malformation

[nils11]

Are cavernous malformations brain tumors?  I have been diagnosed with having 10-12 throughout my brain, with one 2cm one in my brain stem(pons region).  Three have shown evidence of bleeding in the past couple of months(including brain stem).   I'm so confused about my prognosis and future, that I'm feeling terribly anxious and depressed.  My right arm and leg were experiencing deficits, but have improved...but I'm now experiencing some headaches and neck pain...what can I do?  What medications work for this, and am I a "walking time bomb" because of all of these things in my brain???  I need some answers...thanks

[homesafairytale]

I wish I had something great to tell you , I can only comment that I too have a cavernous malformation and it sucks hard. I had a seizure and woke up in the ER. I'm not OK with operating on the damned thing so I'm going to "watch and wait". The doctor told me that they are not tumors and never contain cancer cells, unless you already have brain cancer and I do not. Did your doctor also tell you no sex? Also, do you know how long it takes a bleed to stop? I know the brain is the slowest healing organ in the body...Great. I have been in a terrible mood for the last week since prognosis. They say on the web that no ones ever died of cavernous angiomas, but I know the symptoms can get terrible. It's the symptoms that drive people to surgery.

Best of luck with a quick recovery and no more bleeds!
Sarah

[wingnut19]

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