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Celiac disease, gluten ataxia and epilepsy.
by AnxiousGurl, Jun 26, 2008 11:15PM
My moms medical history- She had seizures when she was a little girl, she was on medication for seizures for 5years. When she was a teenager she got tested for epilepsy and the doctor said its "not classic epilepsy."
She has bad balance for as long as she can remember and has had "dizzy spells"/mini-strokes (where her eyes roll to the back of her head, if she can hold onto something she sways back and forth, if not then she falls to the floor-she has no muscle control, it only lasts for maybe 15-20 seconds if that. It used to only happen when she got up real fast, but now it happens even when shes just sitting. She has slurred speech and head tremors. She feels weak alot and had a series of injuries from falls (broken arm and leg) (2 & 3rd degree burns on her feet) and totaling her car. She has ringing in her right ear and hearing loss in her right. She is very shaky when writing and getting the fork to the mouth. She also has neck and shoulder pain and it comes and goes when it wants, sometimes its all day on and off every two hours and rated between 1-10 as a 20!!!!!!!!!!!!! You can see it that she is suffering in excruciating pain. She also has to get b12 shots which she says she notices a difference in how she feels after the b12shots. About maybe 6 months or more ago- a doctor said she had "Cerebellar ataxia" WHICH the results for it came out negative. In one month she dropped weight, she was around 140 maybe a little less down to 110LBS. I took her to the ER after she was on her hands and knees, suffering in excruciating pain, disoriented and very weak. Her doctor ran tests and found no cancer, ulcers or anything of the sort but came to the conclusion that she has Celiac disease, which because she has an allergic reaction to gluten and isnt getting the nutrients can effect the cerebeller and is why she has the loss of coordination??????? Please tell me what you know, think, any input, knowledge, anything you can help me with, could this really be the answer after these 30 yrs of misdiagnosis. She is now starting a gluten free diet. Since gluten effects the small intestine-after going on this diet, can it be reversed can she heal from this in any way shape or form...please let me know
thanks.
She has bad balance for as long as she can remember and has had "dizzy spells"/mini-strokes (where her eyes roll to the back of her head, if she can hold onto something she sways back and forth, if not then she falls to the floor-she has no muscle control, it only lasts for maybe 15-20 seconds if that. It used to only happen when she got up real fast, but now it happens even when shes just sitting. She has slurred speech and head tremors. She feels weak alot and had a series of injuries from falls (broken arm and leg) (2 & 3rd degree burns on her feet) and totaling her car. She has ringing in her right ear and hearing loss in her right. She is very shaky when writing and getting the fork to the mouth. She also has neck and shoulder pain and it comes and goes when it wants, sometimes its all day on and off every two hours and rated between 1-10 as a 20!!!!!!!!!!!!! You can see it that she is suffering in excruciating pain. She also has to get b12 shots which she says she notices a difference in how she feels after the b12shots. About maybe 6 months or more ago- a doctor said she had "Cerebellar ataxia" WHICH the results for it came out negative. In one month she dropped weight, she was around 140 maybe a little less down to 110LBS. I took her to the ER after she was on her hands and knees, suffering in excruciating pain, disoriented and very weak. Her doctor ran tests and found no cancer, ulcers or anything of the sort but came to the conclusion that she has Celiac disease, which because she has an allergic reaction to gluten and isnt getting the nutrients can effect the cerebeller and is why she has the loss of coordination??????? Please tell me what you know, think, any input, knowledge, anything you can help me with, could this really be the answer after these 30 yrs of misdiagnosis. She is now starting a gluten free diet. Since gluten effects the small intestine-after going on this diet, can it be reversed can she heal from this in any way shape or form...please let me know
thanks.
Member Comments (1)
by AnxiousGurl, Jun 26, 2008 11:21PM
To: everyone
I forgot to add that before I had brought her to the ER she had been vomitting and was having indegestion which was going on and off for a week.
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