Cerebellun Atrophy

Posted By Marleen on May 08, 1998 at 17:02:44:







We need help of where to go next. My sister 33 yo,Married, three children was told she has
cerebellum atrophy and non-tropical sprue. Over the past two years she has been to many Doctors including the Mayo Clinic, none have given her any answers or effective treatment. There does not appear to be any further atropy on the most recent MRI in April 98.  She has unsteady gait, difficulty walking, swallowing, pain in legs and feet - leading to sores and blisters on feet, some unstable blood pressure, and visual distortion. She has followed the Gluten free diet and taken Vitamin E & folate which she was deficent in. Has tried other Meds? Which ones. She has remained mentally stable and very positive through all this, but needs some answers.  She has not told the family much because the Doctors haven told her anymore. She has had to go to half time working.
Is their a Doctor anywhere who can help, or any treatment to suggest to her current Doctor?