When my daughter was diagnosed a few years ago (she is now 9-years-old)
I found some information on a site:
www.conquerchiari.org
I hope this helps.
Hi,
How was the diagnosis made and are you seeing a neurologist for your son? What symptoms does he have?
You could read about this further at the following link -
http://www.emedicine.com/radio/topic149.htm
Let us know about any further queries that you have and post us about how your son is doing.
Regards.
Hi :) My mother has just recently been diagnosed with the Chiari Malformation as well. It took her almost a year to get the right diagnosis, and she had to resort to driving 8 hours to Duke University Hospital to figure it all out. This is a website that will explain what the Chiari Malformation is. http://www.asap.org/chiari-malformation.html
I hope this helps :)