I have spinal myoclonus and have difficulty with most things, it started 4 years ago and I have deteriorated to where anything I do is painful, awkward and clumsy. The pain I suffer now I believe is due to 4 years of jerking and my body has started to give out, I have just turned 49 and feel 94!!!
My day starts with pain on waking, rolling out of bed into a sitting position, struggling to put slippers on, brushing my teeth, getting downstairs, drinking my coffee and so it goes until I go to bed and carry on with pain and jerking in bed (even while asleep)!
Some life, maybe one day they will find out why it happens and find a cure.
Hope you don't suffer too much.
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