Shalom Steve
Thank you for the time you afforded me!Will take advice and try again!
Warmest Regards
TroyK aka Sandy
Hello there Troy K....
This is Scheckel5150 (aka Steve)...Just want to let you know that there isn't a strong liklihood that a physician is going to re-check this particular forum thread ....
That being said, if I were you... I'd try to repost your question as a "New Question" at the main page (it may take you a few times, but keep trying....its often very busy):
http://www.medhelp.org/forums/neuro/wwwboard.html
It looks like the last time that an MD has checked this forum was on (10/29/2004)CCF-Neuro-M.D.-CS
p.s., Good Luck to you....SS
P.s Doc I have had many an incidence of "epileptic" Fits that my paramedic friend tried to explain was inward and outward which confused her as she was taught to judge the level of seizure by the "arm" movement (I seemed to show both, contradictory), when I had a car accident ,I apparently had multiple seizures, the emergency doctor sent me for a cat scan and found nothing so diagnosed my seizures because of the pain of opening my head with my window,(never lost consciousness til seizures tho). P.s could I be having mental seizures (for want of a better description, the seizures have been described as typical of an epileptic, however my doctor could find nothing that would cause such seizures? I would be ever grateful of your expertise and reside in South Africa so could not go to one of you referrals there?
Thank you...
I was diagnosed as MH+ via Muscle Biopsy.
Follow up, I had my appointment w/ Neuromuscular Doc (Dr. Shin Oh, UAB) and he performed an EMG...to which I believe the preliminary results seem to indicate a myopathy of some sort. The doc is waiting on the results of my original muscle biopsy before continuing w/ my treatment. However, I'd like to continue w/ some research of my own...that being said, could someone help me narrow the possible myopathies that may tend to co-occur w/ MH+.
My thanks to anyone that is willing/able to reply.
Sincerely,
Steve
Based on your description it appears you have myotonia (muscle cramps). You also have described malignant hyperthermia, but I am not sure how this diagnosis was made. The chronically elevated CK levels indicate that there is some degree of muscle damage which is continually occurring. I agree that you need to see a neuromuscular specialist and then will most likely need an EMG (muscle/nerve test). After this testing is completed a decision regarding specific blood tests or a muscle biopsy will be made. There are certain conditions which can be found in families, and these include central core disease, myotonic dystrophy, and proximal myotonic myopathy (to name a few). Good luck.
My wife reminded me to mention that I've had some hx w/ Migraines & swelling in feet/hands...not sure if related. Migraines seem to be related to cramps in neck and into back of the head (range of motion can be significantly restricted). Thanks again...