Cystic Encephalomalacia

Hello my name is Kim Newcombe  My son Kai has been diagnosed with a severe disability and here in Australia they are telling me that there is nothing that they can do for him but as a parent I think different.
He was born with Craniosynostosis involving multiple sutures.
He had a pre-op assessment on the 15 August 2005. CT scan at seven(7) weeks and that revealed that he has Marked Cystic Encephalomalacia, involving both cerebral hemispheres. Only the superior parts of the coronal sutures were fuses, likely secondary to his low cerebral volume.[He does not cry.] I believe he can do so much more than what they are saying but unfortunately I have had no help except for a few physiotherapy appointments. I believe that with some kind of mirical and a operation he will become a lot better than he is. If there is any one that you may think that can help please send my details to them they can ring any time day or night I don't care all I want is help for my little man. Kai was born 23-06-2005 he is 2 now. It is more the Cystic Encephalomalacia that i am concerned about.
Thankyou

                     Your sincerely

                       Kim Newcombe


All my details are
Kim Newcombe
25 Hinz Avenue
Farnborough
Queensland
Australia  4703


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