Neurology Community
Dandy Walker and blind
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, Multiple Sclerosis, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank
Blank Blank

Dandy Walker and blind

Following our last ultrasound we were told our unborn girl (about 6 months along) has severe complications. We were sent to another Dr for more testing. He showed us scans of the brain where there is a large cystic mass in the cerebellum. I asked how severe it was and he said on a scale of 1 to 10 with 10 being the worst it was a 7 or 8. He said there was more cause for concern because she had also not formed any eyes and will be blind. Chromosome tests came back normal they said. We have so many questions about what to expect. We are waiting to see a pediatric neurologist but won't get to for another week or two. What questions will they be able to answer? Are there any statistics(mortality, progress, functions) for a case like this? From the ultrasound pictures, he said there were not any abnormalities from the neck down. From what I've read about DWS things can vary greatly from child to child. But I have not come across one case that also included blindness. I don't want any Dr sugar coating the prognosis for me. I need to know what to prepare for. Any information I could get would be much appreciated.
Related Discussions
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
144586 tn?1284669764
Blank
caregiver222
1780921 tn?1462244109
Blank
flipper336
Queen Creek, AZ
209987 tn?1451939065
Blank
tschock
AB
11079760 tn?1449081557
Blank
cjtmn
Minneapolis, MN
Avatar m tn
Blank
FRC23