Demyalinating Neuropathies...

Hi , my pressure palsys have in time become very painfull. The numbness from nerve pressure has developed into painfull jabbing (hot needle-like) discomforts in the muscles affected, mainly arms, shoulders, elbows. I never used to have these painfull experiences until about a year ago or so. It was only numbness/paralysis and lack of llimb functions before. Now added with a very uncomfortable pain. I have H.N.P.P. My neurologist says i have no reflexs in my right arm and left leg now. These are the most painfull areas, i also had 'ulnar nerve exploration' surgery about 5yrs ago, are these linked or mutations or general expectations within H.N.P.P. at a progressive level? I'm 38 and have had palsys since aged 18. I've lost so much physical ability now, ive had to change career too. Any advice on pain relief, or orthotic aid for arms? Many regards, Stephen.

[S. Kaul, MD]

Hey Stephen!

HNPP is a gradually progressive condition with variable expressivity and subsequent episodes may show variable severity with near complete or partial recovery. Management is largely preventive with avoidance of specific prolonged postures that could cause superficial nerve compression. Use of orthtotic devices and protective pads may also help with symptomatic relief, while medication may be indicated when the discomfort described is moderate-severe. It would be best advised to consult a neurologist for a detailed evaluation and suggestion of an appropriate management plan.
Hope this information is helpful.

Take care!