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Neurology (Expert Forum)
Demyelination in my child
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.
Demyelination in my child
by Tiggy, Apr 24, 2001 12:00AM
Hi, I posted under this heading before - thank you for your answer, it was very informative and reassuring.
However I would be grateful if you could just clarify a couple of things for me.
You said you thought my son maybe showing signs of seizure activity and his neurologist seems to agree as he has increased his meds. However, he is still having episodes where his legs go completely limp along with one arm (his right usually). He does not lose consciousness although he says he feels "weird" during these episodes - they pass off in about ten minutes and he can walk again. Is this a type of seizure? He always had complex partial and grand mal before and these are very different. We always knew he might still have seizures even after his surgery as his EEG pre-surgery was showing separate discharges from the right temporal lobe (he had a left temporal lobectomy).
Could I also just ask - is it possible that the "striking demyelination" showing in the biopsy of the temporal lobe that was removed was just confined to that one lobe of his brain? Can you get demyelination in just one area of the brain and the rest of the brain be normal? Thank you so much again for your help and I'm sorry to bother you again.
(By the way, his surgery was carried out at the Walton Centre for Neurology & Neurosurgery here in Liverpool, England - his neurosurgeon was Mr Paul May.)
Best wishes, Tiggy.
However I would be grateful if you could just clarify a couple of things for me.
You said you thought my son maybe showing signs of seizure activity and his neurologist seems to agree as he has increased his meds. However, he is still having episodes where his legs go completely limp along with one arm (his right usually). He does not lose consciousness although he says he feels "weird" during these episodes - they pass off in about ten minutes and he can walk again. Is this a type of seizure? He always had complex partial and grand mal before and these are very different. We always knew he might still have seizures even after his surgery as his EEG pre-surgery was showing separate discharges from the right temporal lobe (he had a left temporal lobectomy).
Could I also just ask - is it possible that the "striking demyelination" showing in the biopsy of the temporal lobe that was removed was just confined to that one lobe of his brain? Can you get demyelination in just one area of the brain and the rest of the brain be normal? Thank you so much again for your help and I'm sorry to bother you again.
(By the way, his surgery was carried out at the Walton Centre for Neurology & Neurosurgery here in Liverpool, England - his neurosurgeon was Mr Paul May.)
Best wishes, Tiggy.
Doctor's Answer
by CCF Neuro[P]-M.D.-RPS, Apr 27, 2001 12:00AM
Dear Twiggy:
I would think that your son co8ld be monitored in a facility where Video-EEG can be performed. This way when a spell happens, it might be documented on the EEG with correlation of the event with the video. I can't tell over the internet if this is a seizure. It sounds compatible with a seizure event. One may just have to adjust or change medication in hopes of decreasing seizure activity. I can't tell you about the demyelination. Yes, a focal area of demyelination could occur in a malformation of cortical development. But again, if there were widespread areas of "striking demyelination" the pre-surgical MRI would have been diagnostic of that finding. So, likely it is focal and limited to the area of surgical removal.
Sincerely,
CCF Neuro MD
I would think that your son co8ld be monitored in a facility where Video-EEG can be performed. This way when a spell happens, it might be documented on the EEG with correlation of the event with the video. I can't tell over the internet if this is a seizure. It sounds compatible with a seizure event. One may just have to adjust or change medication in hopes of decreasing seizure activity. I can't tell you about the demyelination. Yes, a focal area of demyelination could occur in a malformation of cortical development. But again, if there were widespread areas of "striking demyelination" the pre-surgical MRI would have been diagnostic of that finding. So, likely it is focal and limited to the area of surgical removal.
Sincerely,
CCF Neuro MD
