Hi,
After suffering from back pains when slouching from sitting and laying on my back in bed, I had an MRI on my spine which revealed some degree of cord tethering. Unfortunately, due to a mix up, the surgeon I saw had no pictures to look at to see in detail the degree of the tethering. He was given results in text form on paper, which was quite thorough. I believe it had L something when describing the state of the tethering, but I don't recall.
I was born with Spina Bifida and am a wheelchair user. I am 29, 30 in June.
I asked the surgeon whether cord tethering is safe to go untreated, and he said it won't present any symptoms apart from pain. Well, I got a shock when I read on the internet that it can affect motor skills, bladder, among other things. I already have an incontinence problem and have done since I were little. I always did put that down to the spina bifida, not cord tethering. I also have chiari malformation, although I don't recall what type.
I do not get pain every day, and it only depends whether I am in particular situations ie the slouching when sitting and lying on my back. I prefer to sleep on my front, anyway.
What is the likelihood of symptoms becoming worse and the chances of me undergoing surgery?
The surgeon that I saw admitted that he was very biased toward sugery, since that is his profession, and said that he would not hesitate to operate immediately, however, he said I should see a pain specialist first and just keep an eye on it for a while. I also need another MRI so they get some pictures next time.
Apart from pain every now and again, I am fine.
I don't like surgery, as I hate "going under", but the prognosis's that I have been reading online have actually made me consider it.
What are people's thoughts?
Thank you!