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Do I have MSA
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Do I have MSA

I am 44 year old female dx with POTS on 2005 due to positive tilt table. In 2008 POTS worsened and I could not work. At that time I began to have tremors, facsiculations,dropping everything,night sweats, tripping, neuropathy in feet, muscle weaknesss, etc. In 2010 I was dx with ataxia, positive bebinski and rhomberg signs, and tested for MS.All test were fine except CSF showed very high in some type of protein and very low glucose. I have been told by neurologist and PCP that this is related to POTS. I am very ill and progressing rapidly. I have muscle twitches and facsiculations constantly, and the beginning of what I think is dystonia in my feet. I became so confused recently that I briefly did not recognize my family. I also have emotional lability which has only developed in the last 6 months. I should also mention that I have had resurring Ramsay Hunt since 2006, at least twice each year. I have a positive ANA. I take iv iron transfusions due to anemia, which started in 2008 along with other symptoms. My doctor is urging me to go to MAYO, which I would like to avoid. Please advise, Thanks
Tags: MSA
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