Dysautonomia

My husband is 34 yo and has had vertigo, fatigue, and shortness of breath since June 2005. He has not been able to work due to this. When he is not having a vertigo attack, he has constant light-headedness. He says he constantly feels like he's on a boat (prior to this illness, he was already very sensitive to motion). Also prior to this illness, he got altitude sickness when we went up to the mountains on a snowboarding trip. Other symptoms he has are irritability, sensitivity to: noise, certain smells (others he can't smell at all), and pretty much any situation where there is alot going on. He can't hold an intensive conversation for more than a few minutes. Sometimes a question as simple as "what day should I schedule our appt?" (because everything in this house now revolves around his schedule since he is so limited) will send him reeling. He will get so frustrated & irritable because he says it is so difficult for him to make a decision and to 'think straight'. He says his mind feels so cloudy.

To date, he has been to numerous specialists, and had several scans & bloodwork done, and no one has been able to diagnose him. One neurologist suggested he may have a delayed sleep cycle or some other sleep disorder that may be causing this. Is that possible? He also has sleep apnea (he has been using a CPAP since March 07), anhidrosis (so he overheats all the time and that exacerbates the vertigo), and his pulse & blood pressure will sometimes randomly fluctuate up & down. He has been on meds for pulse & BP, and they regulated his vitals, but that did not help with the main problems (vertigo, light-headedness). One doctor said it may be a dysautonomia but he said it is only 'manageble', and cannot be cured. I am not willing to believe that. The human body is capable of healing itself when provided with the correct tools. Our dilemma is figuring what those tools are.

Basically we want to know if there is anyone out there with ANY idea(s) of what may be wrong with my husband...

[karzouz1]

  I am also 34...I woke up one day about 6 weeks ago feeling tired as usual and a little dizzy.  Mid day I feed my daughters lunch and got so dizzy (room spinning) I had to lay down. I got up made dinner...it got worse..by 6:30 I was in the bed, with hubby in charge and I slept until noon the next day. I went to the doctor who said I had Vertigo..She gave me Meklazine and said to rest..   The dizziness started turning into what I now call my brain fog...I have a hard time concentrateing. I go to the store and have no idea what I am there for. I get to the stop sign and have no idea what to do next. It is fleeting. It last a few minutes and then I get my right thinking back..or what I now call thinking. I have been to the eye ear nose and throat! I have had a MRI that ruled out that there is nothing wrong with my Eyes Ears Nose or Throat! I was sent to a Nurologist... I have had blood work and I am scheduled for a MRI a contrast MRI a CAT scan and a Spinal Tap this week. The nurologist is first trying to rule out MS..before he looks at other things like LYME Disease other disease's that mimic MS!  
   I am a bartender and a waittress...I have not worked in 3 weeks..I can't remember what people ask me for. I have a hard time seeing the floor..I know that seems odd..but my eyes wont fox on one thing. I can feel my feet on the floor but I have a hard time knowing that they are touching anything. I can look in the mirror and not see my face. I can focus on eveything around me..but not really on what is in front of me. It is not easy to type..if I look down at the keys I get so dizzy I have to look away. I have numbness in my arms when I sleep.
   I was training to be a Yoga teacher..I could run 6 miles two months ago.. I have 3 jobs and could paint a room before taking the kids to school!  I had a sleep disorder and couldn't sleep more than 5 hours a day..I was a coffee addict..and a social butterfly...
    I can't get out of the bed..I can sleep 20 straight hours..I am on leave...and my company is halted for now..30 minutes of exercize is all I can take and coffee gives me the shakes. I am irritabil, and I will cry at the drop of a pen. Noise and bright lights are more than I can stand for a few minutes. and the brain fog seems to get worse every day.. I see the Doc on the 19 of this month..I am hopeful he will have an answer.   AMY