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223439 tn?1264738096

EXTREME DIZZINESS & MORE :( I'M SO SCARED PLEASE HELP.

Okay I have been feeling like this for two and a half weeks.... only a little bit the first day and keeps getting worse and worse so today I am asking what the heck is goingon with me. I feel REALLY dizzy (i don't even know if i should call it dizzy). It's like I'm really dizzy and fuzzy/numb all over my body. I am so much more tired than I have ever been before... I use to have so much energy but now i just want to sleep or lay down 24/7. I feel like i have to bear down to stay alert/awake/alive. occasionally have shortness of breath due to that feeling of bearing down. my vision is not blurry but really weird whenever i look anywhere. i'm nauseated a lot too. all this gets worse every day and now i have these really weird headaches that hurt in different places in my head(like someone is stabbing me in diff places) but my temples feel like they're hurting and sometimes pound with pain. I had a CT scan of my head done, normal. nothing else yet. do you have any idea what it COULD be or what i need to do or who I should see? I'm so scared I'm gonna die b4 i find out what it is or gonna find out from the doc i should have checked sooner and now i only have months to live. I'm only 25 (female). please someone help. I'm SO scared.
16 Responses
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Avatar universal
I have the same problems, I have had  them for a few years now. After seeing a lot of different doctors and having multiple test run I found out I have chiari malformation type 1. It can lead to other problems such as shortness of breath, heart paps, migraines, constant headaches, vertigo, dizziness, numbing, tingling, and neck pain. It's also hard to find if people have it. I had about 5 or so cat scans and MRIs and no one could find it. Finally my doctor looked and was like "oh you have chairi malformation, I will refer you to a neurologist."  I take Prozac for irritability due to the headaches and Tylenol for the pain. I pretty much was told to just deal with it. There are not many treatments other than surgery to remove part of your skull. Ask your doctor to look at previous exams for chairi, if you have it your brain scans should show it. However, not many doctors know what chiari is.
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Avatar universal
have any of you looked into migraine equivalents, also called vertiginous migraines - I have some similar things except only the left side of my face goes numb, I have no numbness in my limbs - my doctor's diagnosis was migraine associated vertigo without headache.  You can also have it with headaches.  I have a lot of other issues as well, but just wanted to post this so you can look into this - it doesn't seem to be that well known among doctors, it took me several doctors including 3 neurologists to finally get the diagnosis.  
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Avatar universal
I have the same symptoms! I sometimes feel like im loosing my memory aand there are these weird sensations in  my brain im extremely dizzy and my vision isnt blurry but its very weird... unexplainable I have every test done known to man and they say its ANXIETY my mom has the SAME thing and she actually had a mini stroke or a TIA from it! be careful how hard u concentrate on it because it can make it worse
Helpful - 0
795828 tn?1237295179
Greetings - I'm just happy to know that no one's found any cancer or tumors with these symptons.  Mine are exactly the same.  I've had them since Dec 2008 (4 months straight now) and they seem to be getting worse. I'm 34, always exercised, took vitamins, ate right but one day, I started feeling all of these weird things going on inside of me.  It usually only happens when I laying down, falling asleep.  I get really dizzy, feel like my blood's gushing in my head and in my legs (internal shakes), I have pressure in my ears and sometimes pain, my legs and hands feel tingly like they're going numb, heart palpitations, upset stomach/naseau and head pain around my temples.  It feels like everyday I'm struggling just to live and I'm afraid to fall asleep because I might not wake up.  My dr. thinks it's stress and has me taking Xanax for my nerves and Ambien to help me sleep, but I can't imagine what I'm stressed about and why it's been non-stop, every night for the past 4 months.  If anyone finds out anything about this, please let me know.
Thanks  - Julie
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Avatar universal
Hi, I was reading all your post and most of you remind me of myself in my 20s. Here's brief overview. I was always lightheaded, dizzy, tingling in hands, red flushed cheeks very often. I used to have moments when I felt i was walking in the sidewalk instead of on top of it. Vision blurry and very very scared. Then it got to where I had to sit near doors where I could easily get out whether in restaurants, theaters etc. I could never plan to go anywhere cause I never knew how I would feel that day. I spent weeks/months in bed or just dragging around the house in fear of how I felt. Noises got to me. Well I went to one doctor after the other, tests after tests..What it was? Nervous illness! I ran into a book ""Hope and help for your nerves"" by Claire Weekes. It saved my life. Read it. It's accumulated stress, life difficulties etc. Our physical nerves can only take so much before they snap. I am 59 years old today and I never experienced that again. Not that way. When I feel my nerves shot and lightheadedness coming, I don't add fear to it. I let it pass. The book shows you how to do this. Believe me it's worth looking into it.
Wish you all well!
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Avatar universal
I have been suffering from dizziness and tingling in my left hand, and left foot, occasionally wake up with one foot or hand completely numb.
Had a long standging annoying cough, (not producing much mucus or sputum) recurring bouts of tonsilitis and uvulitis, been on anti biotics for about 75% of the last 6 months.
Head cT and MRI show normal according to neurologist, they are saying its anxiety and prescribed Amyltriptine(?) . I am not on it yet, to add insult to injury, this happened 3 weeks befroe my bday, then the day before my bday, I twisted my knee and am on crutches awaiting an operation (had an MRI of knee to show massive cartlidge damage).

I have hig diastolic BP, been monitoring it for three weeks at home, regularly and noticd that whilst it is normally about 95, (140/95), with rest HR of about 75, I've had some occasions where BP is 114/85, (lower systolic too) and HR maybe 100 at rest. Today, conversely, all morning it was 135/90 and HR was 68 at rest..!?
To go from resting HR yesterday of 100+ to 68 today, under same well rested conditions, (off work and couch riddden as I am unable to bear weight) seems odd. makes me worry if this is a heart issue?
Also now concerned at the need for a general anaesthetic for Op next week, if my ticker is a bit "dicky!"
It never rains, does it! ?
Helpful - 0
Avatar universal
Hi all, i have been reading all you accounts of your situations and they seem very similar to what i went through at your age, i was 26. I am now 36 and 99% of the time feel fine..i can only comment on my situation but i never really found an answer to the dizziness, palpatations, disoriontation etc, etc but i feel that the more looked into it, worried about it the worse it was and the more often it would happen..so i decided to ignore the signs keep my self busy , in the evenings have a few glasses of wine to relax and watch a good movie, never go to bed until you are really ready to sleep and if need b have another glass of wine..trust me really works.i did this for around a month and felt so much better..oh 1 more thing, keep a pack of xanax nearby..take half a tab and the anxiety will go and so will the rest of your symptoms..im not a doctor but i have had to deal with this for ten years ..try it, u've got nothing to loose..
Helpful - 0
223439 tn?1264738096
I'm so sorry for not responding skyhawk747, I've had no access to the net for so long. Since this post I've had so many more problems with my health and had an MRI and MRA done as well as all the tests at the cardiologist. I was certain no one knew what was wrong or they just wanted to blame it on stress.... which is prolly what it really was in THEIR heads they just didn't want to tell me they don't know the answer..... but I have read about hypochondria and everything explained in so many sites have described me and my worries so well..... they haven't really explained the dizziness but since reading that I have been much less dizzy and have been able to go on with my life more normally than before when I was so dizzy.... except for a few things that remain.... but I feel much better now that I know I was causing most of my dizziness because I was so in tuned with every little sense of dizziness and pain anywhere in my body. I still have many fears I will die soon but I'm working on that..... I don't think I have any tumors anymore due to researching the hypochondria and reminding myself the doctors DIDN'T find anything. Please everyone look up hypochondria, I'm not saying we all have it but it's a start to look there seeing as how a lot of people I've talked to on the net and some here sound like I did. I hope you're all feeling much better though. BEST BEST wishes :):)

GuamBaybe
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271770 tn?1221992084
Forgot to mention, lately I've noticed the two middle toes on my left foot have been numb/tingling. I notice this specially when I am lying down.
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271770 tn?1221992084
hey all,

Oh wow atom! That's quite a lot of people you've been to! How many of my symptoms have you got? It makes me feel sooooo much better to know that there are others out there.

I'm actually not feeling too bad. Well... not really, but today I don't feel too bad. I've had a lot of activity with my heart palpitations etc in the past two weeks, being rushed into have ECG done (which was done too late) when I was at work due to a big 'episode' of dizziness, heart palpitations and disorientation, and had halter monitor on for 24 hrs but naturally had nothing happen on that day, which was soooo annoying. So my results were fine of course. I also got my hearing tested and apparently I'm fine, but I still stand by the fact that in certain circumstances I cannot understand/hear people.

My balance issues have actually started to get better all of a sudden - after 5 months - but a lot of other symptoms seem to be acting up. I've had to take another week off work and am now considering going part-time. I'm a teacher and this kinda stuff just doesn't go well with trying to teach kids. Not only are they behind where they should be, they get concerned about me because they know I'm not ok.

Anyway, my Neuro appointment is only a month away (finally) so I'm really looking forward to it. I am a little concerned about the fact that if it is epilepsy I may lose my driver's licence but I'll deal with it if it comes. Atom, can you please let me know the results of your neuro consult if you have it before me?

Ta,

Bondy
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Avatar universal
contact me at ***@**** . I have the exact same symptoms going on 3 mths losing my mind..have been to 2 ents 4 g.ps 1 acupuncturist  1 chiropractor 1 pulminarist and now heading to a neurologist would like to stay in touch to get to the bottom..I have been on prednisone for supposed allergies...mistake 3 rounds of diffrent antibiotics,anti-vert,diamatapp,flonase,claritin-d.sudafed,tylenol,aspirin,advil,aleve,maalox the list goes on and on..what were you doing before it all started? im dizzy 24/7  33 WAS healthy male portland ,oregon
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Avatar universal
How are you feeling?

I had my MRI results today all normal (very happy)

ema/Bondy how you guys doing too?
Helpful - 0
271770 tn?1221992084
I am a 24 y.o. female from Australia.

Oh my goodness, it is so weird that you have said your Doc thinks it's Sinusitis!! I had a CT Scan two days ago and the only thing that showed up was cysts in my Maxillary Sinus, which apparently indicates Sinusitis, but apart from the headaches my symptoms have been nothing like it!!

I have been sick for 5 months now - I was diagnosed with Labryinthitis to begin with, after a plane trip interstate for a weekend seemed to cause a major problem with dizziness, fatigue, nausea etc. Like you all it was a constant feeling of imbalance and dizziness, with fuzzy vision etc. I was told it would last 6 weeks, but 12 weeks later I was still unwell. It seemed to improve for a couple of weeks but I then started getting a whole host of other symptoms. I started experiencing 'visual disturbances' and other weird stuff which lasted for a couple of minutes, which the Dr has suggested might be Temporal Lobe Epilepsy. I have also since experienced hearing loss and more distressingly memory loss. This seems to be mostly short-term memory loss. I am now also getting heart palpitations almost daily and sometimes 2-3 times a day.

There are so many symptoms at the moment that my Dr is at a loss to say exactly what is going on. Unfortunately my appointment with the Neurologist is not until late Oct and my appointment with the ENT (for the balance issues etc) is not until Dec!!!!

It's nice to know there are others out there.

Mel
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Avatar universal
yeah its always good to know theres someone out there in the same boat as u! my doc seems to think its some inner ear thing with me, but like u said i aint convinced.i feel weird everyday all day.i was reading alot about anxiety and the symptoms cover just about all what ive got ,but i dunno ,iam only stressed out coz of whats going on with me.its the not knowing which does my head in.what else did ure doc say? iam sure my doc thinks iam a fruit loop and i swear my family think iam hypercondriact i know for a fact iam not!!!!!!!!1
Helpful - 0
Avatar universal
Sorry to hear about this ladies but in a way this is comforting for me to read this as I am suffering the EXACT same stuff, I have had a constant light headedness for 5-6 weeks, feel weird all the time and my eyesight is not blurry it just feels weird. The back of my eyes feel painful to and I am convinced I am going to die as I have a Brain Tumor/Cancer, MS or something terminal.

My Dr. seems to think its Sinusitis but I have a gut feeling its not - I was put on Antibiotics for a week and given tablets to help with the dizziness and surprise surprise they had NO effect at all :(
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Avatar universal
ooo my good god  just like me .... iam terrified ....i am constantly dizzy and feel like iam sooo not with it! iam also 25 yr female uk and went to see doc bout 3 months ago and he seemed to think it was an inner ear thing ,iam not convinced as i have no ear pain ..just off balance  iam sure its a brain tumour!!! its like a constant light headedness 24/7 ,i also get the headaches like a weird feeling all over my head (like goosebumps) sharp pains in temples and forehead just aches. ive got 5 kids and just havent got the time to be like this.the only other weird thing i noticed is igot like raised horizontal lines/lumps on my fingernails.i too am alos tierd all the time,
just wondering do i have the right to demand an mri on the nhs? ive been referred to an ent but not till oct 2nd 07  iam really scared and have panic attacks over this situation.
currently taking betahistine but theyre no good! o and by blood was tested for diseases which caused dizziness as symptoms...its not the dieing iam scared of... its the people i will leave behind not to mention i am abit young! n e feed back would be gr8 x
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