Ear & Face Fullness, going on two miserable years

I have been dealing with symptoms for almost 2 years now. I am a 24 year old healthy(well, I WAS..) female.
The symptoms I have are ear fullness, face fullness(all on right side), muscle tension in face & neck, and headaches. Currently the worst problems and the ones that have not ever subsided are the fullness in my ear and face- it  eels as though my face is swollen(and some people notice a difference/puffiness in my face), and has gotten to the point where it feels like there is pressure behind my eye and my face is drooping-- while everyone tells me they don't see it, it is pretty scary! My ear feels like it hasn't been able to poop since this all began. The headaches have been bad at times, but not so bad recently- I stopped taking my birth control pill which I think may have been contributing to them, but would also mean that it is possible the headaches are not related the ear and face fullness.
In the past two years I have explored all avenues I can think of-from - ENT Docs( been to four), 2 TMJ specialists(one of which is a orafacial pain specialist)- who is confident that while I have similar symptoms of TMJ, I do not have a disorder/TMJ. , 2 physical therapists, 2 neurologists, allergist,

I am beyond frustrated and this has seriously taken over a lot of my life, I am back in grad school and am super worried my symptoms will get worse..

Also, when this all began I came down with a terrible fever and sore throat and tested positive for EBV/MONO.

If anyone has any guidance or similar symptoms I would love to hear from them..