Extreme stabbing pain - typical of MS?

[Janx]

Hi,

I am in the midst of probably being diagnosed with MS (

[kelly24609]

I think you all have LYME Disease.  Even if you have been tested and it came out negative the test can be inconclusive.  Try to find a dr. who does igenex or mdl testing.  all the ms, fibro, lupus symptoms usally turn out to be lyme.  

[sue793]

hi i am a 38 year old women,and i have been having pains in my chest for two months now,i started having pain in my left leg and foot 3 days after i was out of the hospital for my chest,that was in Oct,of this year and since then the pain has gone from my leg to my chest still,arms,both legs,neck,and upper back,and now my toung,my neck.it feels like some one is taking a needle and stabbing me every where.I worry all the time and depression has set in I am so worried about dieing I have three children and i am still young yet,Im not sure what to do,I have pain in my stomach every time i go to the hospital they say that my heart is good and that all my blood work comes out good,and now i have pain in my teeth.it seams like every day there is something new.please i am asking if any body knows what is going on i live in fear everyday,and asking my self am i going to die and im affraid to go to sleep at night.i have no insurence and no job so it is hard for me to go to the doc and find out more.please keep me in your prayers and i will keep u all in my prayers.please if any body has any answers i am more than willing to listen,thank U and God Bless!!!

[jcxzero]

hi im 17 i have extreme pains in the back of my head it hurts way to much to be a mirgrane i've had this for three to four years now and this year it has gooten worse i also have pains all over my bodie sometimes it feels like im being stabbed my muscles jump all the time and it hurts i dont now wat i have can someone please help

[Ponder44]

Hello,

I am a 45 year old man who also has been having similar problems with nerve damage and stabbing/itching/burning  pains in the arches and heels of my feet and sometimes in the ring and little fingers of both hands.
I also suffer the following symptoms, tinnitus, photophobia (sensitivity to light) back and shoulder pains, itchy scalp, and depression, as well as jaw and eye twitching on the side of my face.
I have had lots of tests on the NHS, western blot and ELISA came back negative for lyme, blood tests, MRI scans on neck and brain, LP on spinal fluid all proved inconclusive.
After taking Doxycycline and Amoxycylin for 6 months I did get better and then the symptoms returned. All the Doctors patronise me like I am some sort of Munchausing syndrome freak of something.
After sleeping for 15 hours a day for three years, I have given up on the  
antibiotics and am trying products from Nutramedix Inc, mainly Samento, Cumanda and Burbur with Magnesium for nerve damage plus vitamin C.
I am also trying courses of Bio-resonance through a clinic in Reading Berks, it does seem to be helping. I am not cured yet but definitely am starting to feel better. If I can offer help or advice please post here.
I have also been told that chronic late stage lyme causes white plaque lesions very similar to MS. I am sure that there must be others out there suffering similar issues.

[Ponder44]

Hello,

I am a 45 year old man who also has been having similar problems with nerve damage and stabbing/itching/burning  pains in the arches and heels of my feet and sometimes in the ring and little fingers of both hands.
I also suffer the following symptoms, tinnitus, photophobia (sensitivity to light) back and shoulder pains, itchy scalp, and depression, as well as jaw and eye twitching on the side of my face.
I have had lots of tests on the NHS, western blot and ELISA came back negative for lyme, blood tests, MRI scans on neck and brain, LP on spinal fluid all proved inconclusive.
After taking Doxycycline and Amoxycylin for 6 months I did get better and then the symptoms returned. All the Doctors patronise me like I am some sort of Munchausing syndrome freak of something.
After sleeping for 15 hours a day for three years, I have given up on the  
antibiotics and am trying products from Nutramedix Inc, mainly Samento, Cumanda and Burbur with Magnesium for nerve damage plus vitamin C.
I am also trying courses of Bio-resonance through a clinic in Reading Berks, it does seem to be helping. I am not cured yet but definitely am starting to feel better. If I can offer help or advice please post here.
I have also been told that chronic late stage lyme causes white plaque lesions very similar to MS. I am sure that there must be others out there suffering similar issues.

[Hezett]

I'd look into Charcot-Marie-Tooth disease if i were you......

[kp77]

Hi, altough most other answers say that they seem to think what you have could be lyme or MS, a lot of your symptoms sound similar to what i had.  I don't want to make you worry more than you have to believe me there is nothing worse than not having an answer. I had a healthy life up until about one year ago, when i started experiencing back pain, it got much worse over time and went to several doctors and specialists.  The neurologist that ended up diagnosing me was testing for MS which scared me to no end. It was actually a tumor which was in my spinal area.  I had no symptoms until about a year ago.  But i had extreme stabbing pain, burning, numbness etc pretty much what you have. which eventually left me bedridden, but because of where the pain was located no one could diagnose it. For me it was signs that i was getting paralysis. I was diagnosed through an MRI with contrast dye. I was told i would have had a few more months and i would've been in a wheelchair because it was gonna cut through my spinal cord. My tumor was called a Schwannoma (mostly benign).  It could also be a Meningioma which they intially thought it was until biopsy, which is pretty much the same but can grow on spinal cord or nerves, rather than nerves.  Does it hurt to go up/down stairs, over bumps (even little ones in the road), jumping, running or walking? it did for me. i hope this may have helped.  i hope that everything goes well. good luck. keep us posted. katy

[mineandours]

I wanted to add that I was a "possible MS" diagnosee. I even had brain spots on my MRI.  As it turned out, I had a bad case of neurological Lyme disease.  The symptoms can be very similar even down to the brain spots. Doctors don't know a whole about it which explains why I went through a parade of 14 of them in a two-year period.  I found the LymeNet site and located a Lyme specialist.  Almost three later, I'm still on antibiotics. Once that bacteria enters the central nervous system, all sorts of bizarre and painful things happen. I know of people who have gone so far as to undergo the Avonex injections---then later learned they had Lyme.  Here's a symptoms list for you, in case you want to keep it in the back of your mind. Oh, and you don't have to recall a bite of have gotten the rash to have it AND you can have it and still have a negaive test result. Sign me "Been There, Done That!"

Musculoskeletal System
Joint pain or swelling or tenderness
Stiffness of joints, back, neck
Muscle pain or cramps
Bone pain

Neurological System
Tremors or unexplained shaking (especially at night)
Burning or stabbing sensations in the body
Weakness or partial paralysis/stroke-like symptoms
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motion sickness
Lightheadedness, wooziness
Sudden jerking of fingers or entire limbs
Pain in spinal column

General Well-being
Unexplained weight gain, loss
Extreme fatigue
Swollen glands
Unexplained fevers (high or low grade)
Continual infections (sinus, kidney, eye, etc.)
Symptoms seem to change, come and go
Pain migrates (moves) to different body parts
Early on, experienced a "flu-like" illness, after which you have not since felt well.  (If it was mild, you may not even recall this.)

Eyes/Vision
Double, blurry or dim vision
Increased floating spots
Pain in/behind eyes, or swelling around eyes
Over sensitivity to light
Flashing lights
Optic neuritis

Ears/Hearing
Decreased hearing in one or both ears
Buzzing or clicking noises in ears
Pain in ears or sound sensitivity
Ringing in one or both ears
Pressure or feeling of fullness in ears

Digestive and Excretory Systems
Diarrhea, irritable bowel
Constipation
Irritable bladder (trouble starting, stopping)
Frequent urination that is not normal
Upset stomach (nausea or pain)

Respiratory and Circulatory Systems
Shortness of breath, cough
Chest pain or rib soreness
Night sweats or unexplained chills
Heart palpitations or extra beats
Heart blockage

Psychological well-being
Mood swings, irritability, rage
Unusual depression
Disorientation (getting or feeling lost)
Feeling as if you are losing your mind
Overemotional reactions, crying easily
Too much sleep, or insomnia
Difficulty falling or staying asleep

Mental Capability
Memory loss (short or long term)
Confusion, difficulty in thinking, brain fog
Difficulty with concentration or reading
Going to the wrong place
Speech difficulty (slurred or slow)
Stammering speech
Forgetting how to perform simple tasks

Head, Face, Neck
Unexplained hair loss
Headaches, mild or severe
Twitching of facial or other muscles
Facial paralysis (Bell's Palsy)
Tingling of nose, cheek or face
Stiff or painful neck or creaking
Jaw pain or stiffness
TMJ

[kitlyn]

Hi i wa sreading your post . I am in the proces sof further testing for MS , as my MRI showed two spots on frontal lobe, 1cm. The neurologist is trying to rule out MS.It started in the summer, w severe head pressure, cold sweats, weakness i  rt eye, rt ahnd , and arm, jaw weakness almost stroke like, head shooting sharp pains, etc. The neurologist said mine looks like inflammation, but cannot be sure,have to have lumbar puncture. Had been bitten by lyme tick yrs ago, at age 20 ,a nd am 41 now..not sure whats going on.MS is a very debilitating disease, and my symptoms sound like it could be that..but noone knows yet. I wish you well, sorry to share my story..was tested for lyme in the ER .but never heard back from the DR. neuro about it. I guess i should ask him for further details. Good luck to you, and prayers ..i know how awful it is to have all these weird feelings..I also  get hot burning feeling in legs new this past yr. Let us know how you do. Kitlyn

[kimberleydust]

Hi,
There are many individual symptoms msers get that aren't "typical".  I am in the process of being diagnosed and they are 90% sure I have MS but what made them question my MRI results was that I only had 1 lesion showing up (in the Pons of the brain stem) and the first Neurologist I saw said it wasn't "typical" of MS.  He was expecting to find more lesions elsewhere.  But I have since read that the lesions can come and go.  However my other symptoms add up to MS.  Some of those have been very sharp sudden stabbing pains.  One in my right eye.  I also get pain occuring at different times and the hot and cold and tingling and numbness I get occur spasmodically and in various places. Some come and go in the same place others I have only had once.  Something which I have been having the last couple of days is nerve rippling under the skin (involuntary).  I also get the burning in my feet (not painful).  MS is a very unpredictable disease because of nerve involvement so we can expect to feel all sorts of sensations and pain.  My question is what IS "typical" of MS??

Hope you get some answers soon.  
Louise