I'm going to post the full story here. I went to the quacks at my clinic multiple times and they did absolutely nothing for me. I practically begged for a diagnosis and they gave me nothing. Perhaps the internet will be more useful. Here goes.
This whole thing started in late December. I had spent most of 2014 being stressed and around mid November, my stress levels started spiking to where I would get anxiety attacks that were near impossible to kill without propranolol (which does work nicely). Around the last week of the year, I started feeling random tingling in my face, usually near my mouth. I dismissed it as my imagination or hyperfocus and hypochondria, but part of me knew there was something more sinister going on.
Things truly kicked off in mid January when I started feeling pain in my hands. It would be in one place at a time. Sometimes it would be the right or left hand. Sometimes it would be the thumb and index, sometimes it would be the outer edge of the hand and the pinky. Again, I dismissed it as just me putting too much weight on my hand, but it continued and persisted and it was clear it was something more.
It persisted several days and by mid-week I was starting to Google answers... always a terrible idea. Rheumatoid arthritis was the first outlandish possibility, and then the more acceptable carpal tunnel syndrome came up as an option, which makes sense since I work at a computer. I went to the doctor and he was of minimal help. He asked me some questions and examined my hands to conclude it was not arthritis, and he tapped on the bottom of my wrist to conclude it wasn't carpal tunnel. Except he did not go on to figure out just what it was. No scientific tests were undertaken. No technology was used.
The weekend went by and I still had no answers. By now I was noticing I would feel pain in my wrists and even elsewhere. The wheels were turning and I was realizing the tingling I felt in late December was related to this because my fingers did not always hurt; sometimes they tingled, and my face tingling spread back toward my jawline. I'd feel pain in my elbows (especially when I rested them on my desk) and in my ankles, knees, and random other places predominantly in my limbs.
I should note that around this time, I experimented with cyclobenzaprine but it did nothing for the condition other than temporarily masking symptoms.
By late in the week, I was getting perturbed, simply because I was beginning to worry that this could be something nasty, like MS. Remember, I'm prone to outlandish worst-case scenarios. Wondering if it was autoimmune in nature, I tried fasting for a couple of days. During the fast, the face tingling actually intensified and I felt it in my tongue and the side of my jaw. I also noticed that a relatively small spot on my left jaw was tender and hurt if I applied pressure to it.
The fast did not accomplish anything related to the condition. The day I broke it, I felt a twitch in my eyes when I tried to sleep, although after the anxiety wore off, I slept fine. I went to the doctor again, this time a different person at the same clinic. I asked about the possibility of MS and she poked my fingers and toes with a toothpick and did a few other not-very-scientific tests and concluded I didn't seem to have MS. Once again, no attempt was made to figure out what it WAS. She was perfectly content to let me leave without a diagnosis or even a list of possible diagnoses other than the noncommittal "maybe it's just stress".
A few days later, I got a massage from my regular massage guy. He's good, and very "brutal". The massage goes deep. I had him focus on my hands because that's where most of the pain was, but he also hit other areas like my neck and back of my head and chest. Afterward, I noticed that the symptoms were almost but not quite gone. There was only the occasional tingling in my fingers. On a few rare occasions over the next several days I'd feel that tingling or a twitch right of my right eye when stressed, but nothing bad. Also, the tenderness in my left jawbone was gone. I figured that problem was just tight muscles after all, and laughed at how silly and panicked I was over nothing.
Then about 5-6 days later, it was back.
At this point, I was frustrated with the condition, but because massage helped, I was at least no longer worried it was a neurodegenerative disorder. It was February by this point, and I more or less continued on with my life as normal. Unfortunately, an unrelated issue created all sorts of complications. I have a slow-growing wisdom tooth that occasionally causes my gum to get inflamed which can last a week or so.
During this time, I changed the way I bit down to favor the gum. Over the course of more than a week, I continued to compulsively bite down even though it hurt, mainly because I was annoyed at the gum for impeding my ability to chew. After some time, I noticed that my hand coordination and balance were messed up, as was my vision. Rapidly scrolling objects on screen were hard to follow. Needless to say this was scary and re-introduced the concept of MS, but after some time, I realized it was only after I spent time biting down in this way that I experienced those symptoms. I did my best to avoid biting. Corroborating the jaw/bite theory was the fact that I now had a tenderness in my right temple that felt like my left jaw pain from January.
With time, the gum swelling finally went away although by this time my bite was off because of the way I'd been habitually favoring the gum. This has happened before but it wasn't a big deal. It had no other consequences previously. As the jaw slowly returned to its normal spot, I noticed the ataxia and blurred vision were leaving, although the greater condition itself was unchanged. Various parts of my body still felt the same random tingles and pains I'd been feeling for some time.
If I recall, I returned to the doctor during this time with renewed concerns of MS and she again dismissed my concerns while not making any attempt to further diagnose.
By the end of February, the state of the condition included the original hand and joint pains, occasional face tingling, and a jaw that was only very slowly resetting and not quite getting to its right place. March was still young when I felt mild back spasms. The condition had gotten better in only two ways. The blur and ataxia were seemingly gone and so too was the right temple tenderness. I began formulating a plan that I figured might work, but I feared for a number of reasons.
I had begun to wonder if this was a very deep-seated muscle spasm at work that even massage could not take care of. In 2010, I had bad insomnia preceded by a palpable abdominal spasm that lasted weeks before going away seemingly, only to manifest as insomnia a week later. It was the kind I'd never experienced before - I'm a pro sleeper - where I'd put my head on the pillow and feel absolutely no drowsiness. It wasn't the kind caused by racing thoughts or overt stress. It lasted almost a month before someone gave me some cyclobenzaprine pills which I took for a few days and the condition disappeared.
I did have some fears that something could go very wrong with this course of treatment. I am not sure what the fears were founded on, but they were there. Thus I procrastinated on it for several weeks. But in mid-March, with my bite not having quite returned to normal and in an awkward and annoying position where the outer edges of my left teeth bumped up against each other preventing true closure. When I manually placed my jaw into the right position and closed it, I'd get that same blurry vision and ataxia. I decided it was time to try.
That's when everything went to hell. Message continued (8000 character limit)