Hi, I am 27 years old and 5 years ago I had a tumour on the inside of my spinal cord (a neurofibroma) - it wasnt caught very early so the ofirst op I had my spinal cord was serverely swollen and after 9 hours of surgery my doc had to close and removed the rest separately about 9 months later.
Initially I was paralysed, but have now regained motion in my legs and am up walking - though my legs are still pretty weak and I cannot walk long distances or run!
My main issues is that I get ill with fatigue, upset stomachs, exhaustion regularly and i am not sure if that is simply the result of my spinal cord injury or if it is related to something else?
I am simply not sure what is 'normal' post spinal cord surgery?
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