Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Getting the diagnosis right
by Tanjarine, Jul 19, 2009 11:04AM
Hi.
In a nutshell - I was diagnosed with MS in 99. Overturned in 02: MRI lesions/shadows had remained the same, EEG negative for epilepsy, CSF negative for MS. No cause found. The MS-like symptoms have come and gone. This year in bed until May, now coping out of bed some of the time. Keeping muscles active. Suspect Central Pain Syndrome. Have just found out about Lyme Disease and realise there is a good chance I have it. Childhood was in woods with animals and many ticks. (i recall one on my ankle, and many being removed from the cats). All my symptoms match - even the weird ones - light and sound sensitivity, vibration issues, throat issue, saying the right word, random nerve pain, previous diagnosis (see above and also Glandular fever, chronic fatigue and IBS)...the list really goes on and on. My first health problem was with my knees (random pain in either of them and leg giving way) later followed by extensive neck pains and then back pains - all of which baffled the medics...then leading on to jaw pains (operations on knees and wisdom teeth removed), glandular fever, ME, MS (and not MS), Gluten senstivity and then replaced with IBS. To ending with random pains and problems - this years episode started last year ear pains and then neck pains (this also happened before the MS diagnosis)
Diagnosed so far this year, with Functional Disorder! I'm on the waiting list to go to UK's top Neuro Hospital for a neuropsychiatric assessment and then a months rehab with a team of neuro, psychiatric, physio, cbt etc. In the meantime I'm planning on carrying on with my neck yoga, relaxation techniques and pacing myself.
My question is...Do you have any tips for me? Is this sounding right? (I'm looking for a Lyme Literate MD over here in the UK - do you know of one?)
Your support is really valuable to me. I hope the above 'nutshell' makes sense!!
Many many thanks
In a nutshell - I was diagnosed with MS in 99. Overturned in 02: MRI lesions/shadows had remained the same, EEG negative for epilepsy, CSF negative for MS. No cause found. The MS-like symptoms have come and gone. This year in bed until May, now coping out of bed some of the time. Keeping muscles active. Suspect Central Pain Syndrome. Have just found out about Lyme Disease and realise there is a good chance I have it. Childhood was in woods with animals and many ticks. (i recall one on my ankle, and many being removed from the cats). All my symptoms match - even the weird ones - light and sound sensitivity, vibration issues, throat issue, saying the right word, random nerve pain, previous diagnosis (see above and also Glandular fever, chronic fatigue and IBS)...the list really goes on and on. My first health problem was with my knees (random pain in either of them and leg giving way) later followed by extensive neck pains and then back pains - all of which baffled the medics...then leading on to jaw pains (operations on knees and wisdom teeth removed), glandular fever, ME, MS (and not MS), Gluten senstivity and then replaced with IBS. To ending with random pains and problems - this years episode started last year ear pains and then neck pains (this also happened before the MS diagnosis)
Diagnosed so far this year, with Functional Disorder! I'm on the waiting list to go to UK's top Neuro Hospital for a neuropsychiatric assessment and then a months rehab with a team of neuro, psychiatric, physio, cbt etc. In the meantime I'm planning on carrying on with my neck yoga, relaxation techniques and pacing myself.
My question is...Do you have any tips for me? Is this sounding right? (I'm looking for a Lyme Literate MD over here in the UK - do you know of one?)
Your support is really valuable to me. I hope the above 'nutshell' makes sense!!
Many many thanks
Post Comment
Related Communities
Recent Videos
Related Expert Forums
Recent Activity
Most Popular Trackers
RSS
Expert Activity
Community Members
