Glioblastoma Multiforme

[LadyN]

Has anyone had a loved one with Glioblastoma multiforme? My husband has been diagnosed with this and had a tumor debulking last month. He is now on radiation treatment and is experiencing fatigue and his mind is now childlike. Will radiation reverse his cognitive thinking? Also, has anyone had a loved one who survived this cancer?

[queen209]

My husband has recently been diagnosed with glioblastoma multiforme also.  His tumor is inoperable, and he started chemo 4 weeks ago, and is on his 2nd week of radiation.  They have scheduled 6 weeks.  How l ong has your husband been on radiation, and is he doing chemo?  So far my husband is doing OK.  His tumor is on the left side, and his right side is very weak.  He cannot walk - needs a wheelchair, but still has a majority of his mind.  He has no short term memory.  The prognosis is less than encouraging for sure.  My husband is on Temador, Xeloda, Celebrex, and is having infusion every other week of avastin while on radiation.

[myJanee]

My heart goes out to you ladies. My dear Michael passed away nearly 2 years ago, of a glioblastoma multiforme. I went through all that you're going through in the way of treatment. While everyone with this disease is different, I can say that it is likely that your husband is not likely to live beyond this illness. His cognitive function will not be repaired significantly with just the radiation.

However, you can help him to regain some of his functioning by working with him. Michael and I would play Scrabble, sort of. We would add our scores together and compete with our past scores. I worked with him, with the help of a fantastic speech therapist, on his speaking and number skills.

But while the news is all going to seem negative, you can turn it around a bit, and make things a bit more positive. My strategy was to keep things realistic, but to try to maximize the fun in each day, as long as we could. Issues will present themselves, and, if you take these as challenges, then it's just another adventure. You can use this as an opportunity to get closer to your husband, to discover the *real* love that you share. You can learn about the goodness of your friends, if you will let them help you.

I got lots of help from an online support group, and I can find the URL if you're interested. I got info from all over the place, but braintumor.org is probably the best site. If I can be of any help with any questions, I'd be happy to help.

[eggwine]

hi there my brother has just had his second glioblastoma multiforme debulked he is 39 they said they couldnt put the wafers in due to weeping....he has now had 3 surgeries the first one being a grade 3....can anyone tell me how long he has left as nobody is asking the question...many thanks...

[eggwine]

i hope you are all okay and i just want to say be strong everyone,this is a really soul destroying desease.....but a possitive attitude will help immensly.....love to you all.xxxx i know i asked that question earlier but im sure its one we all deep down need and want to know...xxxx

[kevshirlll]

my husband also has this awful disease, my heart too is broken,he is going on his third year as a survivor. the neurosurgeon calls him his star patient. they said with the size tumor that he had he probably should have never made it out of the hospital the  first time and they were amazed that he had never had a seziure nor has he had one since{knock on wood} just remember there is hope, just pray like you've never prayed before and be there for him, as he will need you now more than ever and take help from anyone that wants to help you because you are going to get tired as well.you are going to feel so overwhelmed,it's only natural. please talk to someone you feel comfortable with talking to, it does help, and if you don't have anyone, you can talk to me i really do understand.god bless you both

[yingnoy846]

My dear husband was also DX with GBM on Aug 16, 09. Went through 2 resections and he still in the hospital til now. Unfortunately his surgery was not successful. He completely lost his speech and could not move after the surgery. I am so devastate right now and deeply regret that we decided to have him go through the surgery.
He had 2 weeks of radiation with chemo but seems like thing is getting worse. Now he sleeps more than 20 hours a day....God Bless You All
DiDi